Share your Story

Sharing personal experiences can foster understanding, build empathy, reduce stigma, and create support networks.

Some to the benefits of Sharing your Story can include:

Emotional Healing
Verbalizing and documenting challenges and victories can bring a sense of catharsis and self-understanding

Building Connections
Others who share similar experiences will feel less isolated

Advocacy and Awareness
Personal stories can educate others and raise awareness about epilepsy and seizure disorders

Our How to How to Share your Story guide provides tools and resources for you to tell your story your way!

"It was a tough journey to change people's minds, who believe epilepsy is a curse and also a witchcraft."

I began my epilepsy supporting journey in 2015 by creating an epilepsy awareness campaign which touched the community. We formed a community-based organization known as Ufanisi Progressive Group for People...

— Patrick Chirongo - In his own words

Malindi, Kenya

"With proper support and treatment, the pain and struggles of epilepsy can be lessened, and those affected can reclaim control of their lives."

I'm a published book author of "An Education In Epilepsy In My Own Word". Drawing from my personal experience and extensive research, I aim to educate readers about the complexities...

— Sallie Johns

Harrisburg, Pennsylvania

"I have been having Seizures since 1986"

I have been having Gran Mal Seizures since 1986. When I was an infant I was diagnosed with menigitis. They believe this is what is the cause. However, the etiology...

— Lambert D. Talley

Compton, California

"I don’t see my health conditions as obstacles but as unique experiences that have made me more self-aware and empathetic toward others."

I approach life with a positive mindset, seeking ways to improve myself while avoiding anything that could trigger my epilepsy. I focus on what I can do rather than what...

— Eskander Ahmed

Tunisia

"For my grandson, Ethan "

A song...

— Kevin Weaver, Ethan's grandfather

Show Low, Arizona

"Lack of awareness motivated me to dig deeper..."

I first encountered a seizure when working in a corporate company—my diagnosis was not immediate and was quite a process. I expected treatment to be done and the body to...

— Millicent Misango

Kenya

"The EMT said that they thought that I had a seizure. I didn’t want to believe anyone. I had never had a health issue before. "

I was driving home after work one day at the age of 26. I woke up in the back of an ambulance asking where I was and why. I had...

— Jeremy Gibel

Rockmart, Georgia

"I would not be here as healthy as I am without my local Epilepsy Association. "

I am thankful for having my own strength and the love of family and friends. I am grateful every day.

— Diane Basty

Pennsylvania