Shared Stories

Featured Stories

Discover inspiring shared experiences

"It was a tough journey to change people's minds, who believe epilepsy is a curse and also a witchcraft."

I began my epilepsy supporting journey in 2015 by creating an epilepsy awareness campaign which touched the community. We formed a community-based organization known as...

— Patrick Chirongo - In his own words

Malindi, Kenya

"With proper support and treatment, the pain and struggles of epilepsy can be lessened, and those affected can reclaim control of their lives."

I'm a published book author of "An Education In Epilepsy In My Own Word". Drawing from my personal experience and extensive research, I aim to...

— Sallie Johns

Harrisburg, Pennsylvania

"I have been having Seizures since 1986"

I have been having Gran Mal Seizures since 1986. When I was an infant I was diagnosed with menigitis. They believe this is what is...

— Lambert D. Talley

Compton, California

"I don’t see my health conditions as obstacles but as unique experiences that have made me more self-aware and empathetic toward others."

I approach life with a positive mindset, seeking ways to improve myself while avoiding anything that could trigger my epilepsy. I focus on what I...

— Eskander Ahmed

Tunisia

"For my grandson, Ethan "

A song...

— Kevin Weaver, Ethan's grandfather

Show Low, Arizona

"Lack of awareness motivated me to dig deeper..."

I first encountered a seizure when working in a corporate company—my diagnosis was not immediate and was quite a process. I expected treatment to be...

— Millicent Misango

Kenya

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The stories shared here offer genuine glimpses into the daily realities, challenges, and triumphs of people whose lives have been touched by epilepsy.