Shared Stories

Featured Stories

Discover inspiring shared experiences

"That gave me enormous hope for the future."

What struck me most wasn’t just their kindness — it was their genuine, unfiltered curiosity. The students asked thoughtful, matter-of-fact questions. They weren’t uncomfortable. They...

— Wendy Steel - Young Adults with Epilepsy

"By sharing our experience, we hope to raise awareness about pediatric epilepsy, the risks of nocturnal seizures, and the importance of comprehensive support systems that help children feel safe, supported, and empowered."

Our story shares our family’s journey after our six-year-old daughter, Janessa, was diagnosed with focal epilepsy following her first seizure.

— Jessica Nakagawa

Spring, Texas

"I do my best to balance my medications and manage my stress and anxiety to live the healthiest life I can."

I am 29 years old and live with epilepsy. I had a stroke at birth, had seizures but were controlled with medication. The stroke affected...

— Skylar

Rensselaer, New York

I developed Epilepsy in my late 20's when I was working hard as a CAD Operator and taking care of my Father when he had...

— Don C Ball

Burbank, Illinois

"It was a tough journey to change people's minds, who believe epilepsy is a curse and also a witchcraft."

I began my epilepsy supporting journey in 2015 by creating an epilepsy awareness campaign which touched the community. We formed a community-based organization known as...

— Patrick Chirongo - In his own words

Malindi, Kenya

"With proper support and treatment, the pain and struggles of epilepsy can be lessened, and those affected can reclaim control of their lives."

I'm a published book author of "An Education In Epilepsy In My Own Word". Drawing from my personal experience and extensive research, I aim to...

— Sallie Johns

Harrisburg, Pennsylvania

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The stories shared here offer genuine glimpses into the daily realities, challenges, and triumphs of people whose lives have been touched by epilepsy.