Epilepsy Alliance America extends its support to all who are facing the devastating effects of Hurricane Helene. We know and understand that the recovery needs and efforts are growing and will continue for many months. We are particularly concerned about the needs of those with epilepsy who live in these storm torn communities. If you […]
Senator Cory Booker (D-NJ) and Representatives Donald Norcross (D-NJ-01), Don Bacon (R-NE-02), Jim Costa (D-CA-21), Brian Fitzpatrick (R-PA-01), and Eleanor Holmes Norton (D-DC-AL) introduced the Seizure Awareness and Preparedness Act (S. 5065/H.R. 9635) on September 17, 2024. The legislation would create a federal grant program for local educational agencies to support students with epilepsy or […]
Epilepsy Alliance America is a proud member of the International Bureau for Epilepsy (IBE). On behalf of the International Bureau for Epilepsy (IBE), Epilepsy Alliance America encourages you to participate in the Global Epilepsy Needs Study (GENS), a groundbreaking research study aimed at understanding and addressing the diverse needs of individuals living with epilepsy and […]
Congratulations to the 2024 Lorna Myers PNES Scholarship Recipients. Thanks to the continued generosity of Dr. Lorna Myers, Epilepsy Alliance America has a scholarship program for students with a diagnosis of psychogenic non-epileptic seizures (PNES). In June 2024, Epilepsy Alliance America awarded 21 scholarships for a total amount of $18,500. In the last four years, […]
The following press release was published on July 8, 2024 by the World Health Organization WHO has today published a new implementation toolkit to the Intersectoral global action plan on epilepsy and other neurological disorders (IGAP), outlining specific actions and resources for countries to improve services for people with neurological disorders in preparation for meeting IGAP’s […]
Epilepsy Alliance America participated in the 56th Annual National Association of School Nurses (NASN) Conference: NASN2024 – Stronger Together in Chicago, Illinois from June 28 – July 1, 2024. This was the first time that Epilepsy Alliance America participated in this dynamic conference. More than 1,200 school nurses from across the country were in attendance. […]
The following is a press release from the Pediatric Epilepsy Research Consortium (PERC) regarding new research published in the Scientific Journal “Pediatric Neurology”. https://www.pedneur.com/article/S0887-8994(24)00157-7/ You can read the full press release here. Niwot, Colorado- Members of the Surgery Special Interest Group of the Pediatric Epilepsy Research Consortium (www.perc-epilepsy.org) evaluated the characteristics of children in the […]
From PublicSchoolWORKS Create a Safer Environment for all Students & Staff who Experience Seizures Empower your school community to provide support for students with epilepsy and be prepared to respond to seizures with the new eBook, Improve School Safety: A Guide to Supporting Students with Epilepsy. Even if you don’t have student or staff diagnosed […]
Epilepsy Alliance America is proud to have supported this white paper on childhood absence epilepsy produced by the Clinical Neurological Society of America , which also led to this informative webinar. From the White Paper…. Childhood absence epilepsy (CAE) is one of the most common pediatric epilepsy syndromes, experience only absence seizures, which are short staring […]
Epilepsy Alliance America is proud to be a National Partner of Epilepsy Awareness Day at Disneyland. Epilepsy Alliance America, and many of our member organizations, look forward to attending this incredible event that provides vital EDUCATION and incredible INSPIRATION for people with epilepsy, and those who care for them, in November, 2024. This year, Epilepsy […]