Thank you to Epilepsy Alliance America member organization, JoshProvides, for this feature in their Summer 2025 eNewsletter By Sandy Chase Executive Director Lisa Gallipoli of Epilepsy Alliance America advocates for those living with epilepsy. Her illustrious 25+-year career fostering healthcare nonprofits includes American Liver Foundation, American Heart Association, and the National MS Society. Having joined […]
Epilepsy Alliance America was proud to attend the Annual Meeting of the National Association of School Nurses held in Austin, Texas on June 25-27, 2025. Representing Epilepsy Alliance America were Amanda Mitchell, Epilepsy Alliance America Board member and Lisa Gallipoli, Executive Director. More than 1,000 school nurses from across the United States were in attendance. […]
July 8, 2025: Epilepsy Alliance America thanks the thousands of constituents in the epilepsy community who joined together to ask Congress to protect Medicaid from substantial funding cuts. Your journeys are inspiring. Your voices are essential. Unfortunately, the cuts and changes to Medicaid in the budget will have a devastating impact on the epilepsy community. […]
Medicaid is more than just insurance – it is a lifeline! Medicaid covers critical services such as: Access to neurologists and epilepsy specialists Anti-seizure medications that are often unaffordable without coverage Diagnostic testing and mental health support Home- and community-based services that promote independence Transportation to medical appointments and case management Without Medicaid, many people […]
CDC supporters continue to rally for public health months after mass layoffs began • Georgia Recorder Note: Epilepsy Alliance America is currently part of a Cooperative Agreement with the CDC Epilepsy Program. The agreement started in September 2023. Epilepsy Alliance America manages a Learning Collaborative for other CDC Component 1 grantees to identify best practices […]
Congratulations to the 2025 Lorna Myers PNES Scholarship Recipients! Thanks to the continued generosity of Dr. Lorna Myers, Epilepsy Alliance America has a scholarship program for students with a diagnosis of psychogenic non-epileptic seizures (PNES). In May 2025, Epilepsy Alliance America awarded 10 scholarships for a total amount of $14,250. In the last five years, […]
Updated Classification of epileptic seizures The ILAE has released an updated classification of epileptic seizures, building upon the framework established in 2017. The update, published in Epilepsia, aims to enhance clarity, consistency, and clinical utility across global settings. The revised classification includes four main seizure classes and 21 seizure types—down from 63 in the 2017 version. […]
Rochester, N.Y.: A local organization supporting people with epilepsy is raising concerns about recent staffing cuts at the Centers for Disease Control and Prevention (CDC). BACKGROUND: CDC, NIH and other federal health programs face deep funding cuts under draft budget | Public health expert says ‘there’s no way we won’t regret cuts’ at Health & Human Services For […]
(April 15, 2025): Epilepsy Alliance America is proud to have joined the 117 undersigned organizations – representing people living with epilepsy; caregivers and loved ones; physicians, care providers, and epilepsy centers; epilepsy researchers; and others – united in opposition to recent actions by the Administration and Congress to cut vital federal epilepsy programs. As the […]
April 11, 2025 What Do Sweeping Government Budget Cuts Mean for Epilepsy? Federal health agencies have long funded epilepsy research and patient support. Now the future of those efforts is unclear. For decades, the epilepsy community has depended on the Centers for Disease Control and Prevention (CDC) to fund research and patient-support efforts to help […]