Red tape should never stand between a child and their treatment. That’s why we’re urging lawmakers to support the Accelerating Kids’ Access to Care Act. Every child deserves the best care—regardless of who they are, where they live, or their family’s income. Epilepsy Alliance America supports this legislation. We ask lawmakers to please co-sponsor S. […]
UPDATED June 17, 2025 Epilepsy Caucus Co-chairs, U.S. Senators Eric Schmitt (R-MO) and Amy Klobuchar (D-MN), along with U.S. Representatives Jim Costa (D-CA-21) and Greg Murphy, MD (R-NC-03) reintroduced the National Plan for Epilepsy Act (S. 494/H.R. 1189) on February 11, 2025. The Act supports the development of a comprehensive strategy to prevent, diagnose, treat, and […]
Please watch this powerful documentary. Click here for the toolkit which details more about the documentary and how best to get involved. The Whitten-Newman Foundation and BAND Foundation partnered with the International Bureau for Epilepsy to present The Curse of Stigma Documentary Film to raise awareness about stigma worldwide. #StigmaOfEpilepsy A powerful and intimate documentary […]
Epilepsy Alliance America’s Board of Directors met in September, 2024 and approved the officer slate for 2025. The terms for the officers take effect on January 1, 2025. Liza Gundell will serve as Board Chair starting January 1, 2025. Liza has been a member of the Executive Committee of Epilepsy Alliance America since January, 2023, […]
Epilepsy Alliance America’s National Professional Advisory Committee met in-person in Los Angeles, California on December 7, 2024 during the American Epilepsy Society’s Annual Meeting. This group of advisors typically holds its quarterly meetings virtually but convenes in-person each year at the AES meeting. Six new members of the NPAC officially begin their three-years terms on […]
The annual American Epilepsy Society Meeting brings together healthcare providers, scientists, advocates, industry, and other professionals dedicated to better outcomes for people with epilepsy. Epilepsy Alliance America representatives attended the Annual Meeting of the American Epilepsy Society in Los Angeles, California on December 6 – 10, 2024. Board members, staff, representatives from our member organizations, […]
Epilepsy Alliance America is committed to keeping telehealth accessible. The goal is to protect telehealth as a lasting, meaningful tool for patients and health care providers. Epilepsy Alliance America recently signed on to a letter of support urging House and Senate Leadership to extend Medicare telehealth flexibilities set to expire at the end of 2024. […]
Epilepsy Alliance America has been a proud member of the Infantile Spasms Awareness Network since 2021. Along with 37 international organizations, Epilepsy Alliance America will recognize the Tenth Annual Infantile Spasms Awareness Week (ISAW) from December 1 to 7, 2024. You can learn more about Infantile Spasms here. Infantile Spasms Awareness Week (ISAW) The goal […]
November is Epilepsy Awareness Month and it has a way of passing in the blink of an eye! The saying is time flies when you’re having fun and we certainly had fun attending the annual Epilepsy Awareness Day and Expo at Disneyland Resort on November 18-20, 2024. This event is the largest gathering of epilepsy […]
The United States Department of Education’s Office for Civil Rights released a new resource on protecting students with epilepsy in K-12 and higher education in June, 2024. The resource informs students with disabilities, their families, and schools, about relevant legal rights under Section 504 of the Rehabilitation Act of 1973. Section 504 prohibits discrimination against […]