Epilepsy Alliance America is proud to have partnered with AJ Taylor, a patient advocate from Georgia, and the National Advocates for Seizure Safe Schools to advocate for the passage of AJ’s Law which was signed by Governor Kemp on April 13, 2023. “We are truly grateful to the Georgia Legislature for passing SB45. This important […]
The Seizure Action Plan Coalition (managed by Epilepsy Alliance America) is proud to be distributing this educational program. For more information about this program – you can see the full press release from CMEology here: Educational Online Video Series Helps People with Epilepsy who have Seizures – EIN Presswire (einnews.com) You can learn more about […]
Epilepsy is a neurological disease that doubles or triples the risk of a person dying prematurely. Important causes of death among people with epilepsy include injuries, status epilepticus, and SUDEP, some of which may be preventable with access to high-quality specialty health care and compliance with effective treatment plans. In 2022, the Child Neurology Foundation […]
MEDIA PRESS RELEASE Download this press release here February 1, 2023: The THIRD ANNUAL Seizure Action Plan (SAP) Awareness Week will be held February 13-20, 2023, organized by the Seizure Action Plan Coalition, a collaboration managed by Epilepsy Alliance America. The campaign is underwritten by presenting sponsor Neurelis, Inc., with generous supporting funding from UCB, Inc. SAP […]
Epilepsy Alliance America is proud to share that we have become the Managing Organization of the Seizure Action Plan Coalition as of January 1, 2023. We stand on the shoulders of the Founding Organizations: the Dravet Syndrome Foundation, the LGS Foundation and the TSC Alliance. We look forward to expanding the reach and impact of […]
Epilepsy Alliance America’s Board of Directors met in November 2022 and approved the nominations of new members of the Board of Directors as well as the officer slate for 2023. The terms for the new Board members and officers take effect on January 1, 2023. BOARD LEADERSHIP PEGGY BEEM JELLEY Peggy will serve as Chair […]
What the EF (WTEF) is a podcast that discusses, points out, and chuckles at the ridiculous, poignant, heartbreaking, and sometimes funny sh*t that happens with epilepsy. By adding laughter to the conversation, people are able to connect, lower their guards, and open themselves to vulnerable discussions. The podcast’s goal is to explore the annoying, beautiful, […]
Epilepsy Alliance America representatives attended the American Epilepsy Society Annual Meeting in Nashville, Tennessee on December 2-5, 2022. Board members, member organizations, and members of the National Professional Advisory Committee had the opportunity to attend the meeting. It was educational, informative and impactful and a great opportunity to be together IN PERSON! Epilepsy Alliance America […]
Joyce Bender welcomed Patricia Dean, Epilepsy Network Liaison to her show, Disability Matters on November 22, 2022. Patricia Dean: Mission of Epilepsy Alliance America Tuesday, November 22, 2022 (voiceamerica.com) Epilepsy Alliance America is a growing national organization representing like-minded local, regional, statewide, and even other national agencies dedicated to serving the everyday needs of people […]
In August, 2022, the Seizure Rescue story of Lori Keeney and Gavin Keeney from Oklahoma went ‘viral’. Gavin, 10, saved his mother, Lori, who had a seizure in their swimming pool. The video was captured on a home-security camera. Epilepsy Alliance America Board members saw the story and were inspired to reach out to […]