Get involved
It's easy and will have a huge impact!
We need your help to advocate for critical issues and policies that directly impact the epilepsy community and all affected by seizure disorders. By lending your voice, you can help drive meaningful change, influence decision-makers, and improve the lives of those living with epilepsy and seizures.
Below are current legislative initiatives and calls to action. Your engagement—whether through contacting legislators, spreading awareness, or participating in advocacy events—can make a real difference. Together, we can push for policies that improve access to treatments and support families navigating the challenges of seizures.
Take Action
National Plan for Epilepsy
Epilepsy Alliance America joined more than 125 epilepsy organizations across the country in signing a letter of support for the National Plan for Epilepsy Act.
Epilepsy Caucus Co-chairs, U.S. Senators Eric Schmitt (R-MO) and Amy Klobuchar (D-MN), along with U.S. Representatives Jim Costa (D-CA-21) and Greg Murphy, MD (R-NC-03) reintroduced the National Plan for Epilepsy Act (S. 494/H.R. 1189) on February 11, 2025. The Act supports the development of a comprehensive strategy to prevent, diagnose, treat, and cure epilepsy and improve the well-being of people with epilepsy and their families.
Learn more about the National Plan for Epilepsy. Take Action and contact your Representative and Senators today!
Congressional Epilepsy Caucus: A Voice for the Epilepsies
The Caucuses launched in February 2023 for the House of Representatives and in February 2024 for the Senate with the aim of bringing together Members of Congress to raise awareness about the epilepsies and implement meaningful policies. This effort will continue to elevate the voice of the epilepsy community in the nation’s capital.
Purpose of the Caucuses:
- Raising awareness in Congress about the many causes of epilepsy and the needs of people living with the epilepsies
- Providing Seizure First Aid training to Congressional Staff and the Capitol Hill community
- Protecting crucial health care coverage policies like Medicare’s Six Protected Classes and improving coverage of needed health care services, treatments, and devices
- Advancing surveillance, research, data and innovation to better understand and treat the epilepsies
- Protecting the rights of people with the epilepsies
- Promoting the needs of people with the epilepsies through legislation, appropriations, and policy
You can learn more about the Congressional Epilepsy Caucus here.
You can ask YOUR Representative and Senators to join the Caucus today.
Seizure Awareness and Preparedness Act
Epilepsy Alliance America supports the Seizure Awareness and Preparedness Act.
This legislation was introduced by Senator Cory Booker (NJ) in September, 2024, and it is expected to be reintroduced in March, 2025.
You can learn more via the Fact Sheet provided.
You can read the proposed legislation here..
Accelerating Kids Access to Care Act
Red tape should never stand between a child and their treatment. That’s why we’re urging lawmakers to support the Accelerating Kids’ Access to Care Act. Every child deserves the best care—regardless of who they are, where they live, or their family’s income.
Epilepsy Alliance America supports this legislation.
We ask lawmakers to please co-sponsor S. 752/H.R. 1509 and for Congress to enact the Accelerating Kids’ Access to Care Act this year.
Patient & Provider Advocates for Telehealth
Patient & Provider Advocates for Telehealth
Epilepsy Alliance America is a member of this coalition which is working to keep telehealth accessible. The goal is to protect telehealth as a lasting, meaningful tool for patients and health care providers. Review this flyer regarding at home testing and monitoring for telehealth appointments
Partnership for Part D Access
Epilepsy Alliance America is proud to have joined the Partnership for Part D Access Coalition.
The Partnership for Part D Access is dedicated to providing opportunities to bring awareness to the importance of Medicare’s Six Protected Classes and educate patients, providers, and communities about ways to work together to preserve this important patient access policy. The Six Protected Classes Policy ensures that all or substantially all medications in certain therapeutic areas are covered by Part D plans. Congress created this policy to protect Medicare beneficiaries with some of the most serious health conditions —mental health challenges, cancer, HIV, epilepsy, and those at risk of organ rejection. Congress has repeatedly reaffirmed bipartisan support for the six protected classes. You can learn more here.
Sign-On Letters and other Advocacy Updates
Epilepsy Alliance America signs on to letters to support issues that will impact epilepsy care across the country.
Here are some of the letters that Epilepsy Alliance America has signed on to in the past.
Letter to President Biden urging more funding for the epilepsies. Sent February 13, 2024
Our Partners
Epilepsy Alliance America works with various coalitions to advance our advocacy agenda.
About Epilepsy Alliance America’s Advocacy Efforts
The Advocacy efforts of Epilepsy Alliance America are led by its Board of Directors with guidance and expertise provided by the National Professional Advisory Committee.
If you have a question about Epilepsy Alliance America’s Advocacy efforts, or have an issue that you believe Epilepsy Alliance America and/or our member organizations should be aware of, please email us at [email protected].
We encourage everyone to learn more about the Advocacy Issues that are important to the epilepsy community.