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The Curse of Stigma Documentary Film

Please watch this powerful documentary. Click here for the toolkit which details more about the documentary and how best to get involved.

The Whitten-Newman Foundation and BAND Foundation partnered with the International Bureau for Epilepsy to present The Curse of Stigma Documentary Film to raise awareness about stigma worldwide.

#StigmaOfEpilepsy

A powerful and intimate documentary film, “The Curse of Stigma” tells the story of Kenyans living with epilepsy and the pain, isolation, and harm they have suffered because of discrimination and deeply embedded cultural beliefs. Their ultimate understanding of epilepsy as a treatable condition leads them to better health and brighter futures. By telling their truth, and the truth about epilepsy, they overcome shame – the ultimate curse of epilepsy stigma.

The extended trailer of “The Curse of Stigma” premiered at the 2023 International Epilepsy Congress in Dublin, Ireland.

The Curse of Stigma explores several profound themes throughout the film:

Understanding Epilepsy
The film provides an in-depth look at the lives of individuals with epilepsy in Nairobi, Kenya, shedding light on their myriad of challenges. It addresses widespread societal and cultural misconceptions that lead to stigma, discrimination, and poor health. Through touching personal stories, the film portrays the transformative journey of individuals and their families who come to understand epilepsy as a treatable condition and in doing so inspire other people living with epilepsy to seek out treatment. Furthermore, the film underscores the public health burden of this disease which, although treatable for many, has been neglected.

Promoting Human Rights and Advocacy
The film highlights the severe human rights violations experienced by individuals with epilepsy due to entrenched societal stigma. It explores how this stigma affects various aspects of life, including relationships, safety, access to education, employment opportunities, and healthcare. By highlighting personal stories, such as that of young student Dorcas, “The Curse of Stigma” emphasizes the critical need for advocacy and increased global awareness to support marginalized communities and uphold their human rights.

Overcoming Stigma
The film showcases the courage and resilience of individuals living with epilepsy, inspiring viewers to take action against stigma within their communities and countries. The personal stories of these individuals and their families demonstrate the power of advocacy and community support in overcoming societal barriers. The film encourages individuals to use their platforms and voices in various settings to challenge misconceptions and promote understanding of epilepsy. It also highlights specific actions communities can take to create a more inclusive environment and emphasizes the role of educational initiatives and awareness campaigns in fostering societal change and countering harmful stereotypes.


The Whitten-Newman Foundation and BAND Foundation proudly partnered with the International Bureau for Epilepsy to present The Curse of Stigma Documentary Film to raise awareness about stigma worldwide.

You can learn more about the film at The Curse of Stigma website.

Epilepsy Alliance America is proud to be a Campaign Ally, sharing this important film with our community and the communities of our member organizations.