
Back to School Checklist







A Seizure Action Plan is not a piece of paper, it's peace of mind!
Update your Seizure Action Plan (SAP)
Discuss your Seizure Action plan with your doctor and have them sign off on the document.
Take the time to discuss rescue medication options available to you and incorporate in your Seizure Action Plan
Find more seizure action plan resources at Seizure Action Plan Coalition
Work with your school to ensure that all school personnel who work wtih your child have not just access to the Seizure Action Plan but have read it and understand it.
Prepare your School
- School Personnel Training – Ensure that all staff at the school are trained in Seizure Recognition and First Aid.
- Download and Provide Posters for School if they do not have them available.
- Schedule a meeting with school staff (or include during a scheduled 504 or IEP meeting) to discuss any accommodations needs and the Seizure Action Plan.
- Prepare for your IEP or 504 Meeting. Several of our member organizations provide Special Education Advocacy services to assist you.
- When possible, meet the teachers and other school personnel who will have the most contact with your child. Share their Seizure Action Plan with them but ‘bring it to life’ with other information including what is ‘typical’ for your child.
- Make sure your child’s classroom is prepared. Do they have a seizure comfort kit? It could include a pillow, a blanket, an extra set of clothing, a special snack, or anything else to help your child post-seizure.
- Complete any forms required for medication – including Anti-Seizure Drugs, (ASDs) as well as Rescue Medications. Get an extra labeled bottle of medication for the school if your child takes medication on campus.

Webinars and Videos for Students of All Ages
Off to College: A Guide for Students with Epilepsy
Back to School: Preparing your Child with Epilepsy for the New School Year
Seizure Safety Information for College Students
Empowering Students With Epilepsy
Podcasts
Carpe Seizen: Epilepsy, College, and Josh Hutcherson
What the EF Podcast: Spotlighting Teens Living With Epilepsy
Seizing Life Podcast: Epilepsy and College
Seizing Life Podcast: Kids Ask Docs the Darndest Things About Epilepsy
Educate Peers
Work with your school to educate your child’s classmates about epilepsy and seizures. Education is key to reducing stigma.
Epilepsy-related Book Recommendations for the Classroom
- Room for Friends: A Story to Empower Kids with Epilepsy
- The Great Katie Kate Explains Epilepsy
- Taking Seizure Disorders to School
Kid-Friendly Videos About Epilepsy
1 in 26 videos provided by member organization Epilepsy Association of Western and Central PA.

Seizure ID Products
Ensure that your student has a wearable medical alert ID. This QR enabled product allows others the ability to access seizure safety steps and emergency contact information with a quick scan from their phone. Epilepsy Alliance America can provide a $35 coupon to individuals with epilepsy towards a product from GetMyId.com.
Make Connections. Get Support
Epilepsy can too often be an isolating condition. Consider finding a support group for you and your family.
Learn more about the Member Organizations of Epilepsy Alliance America and the programs and services they offer to people with epilepsy and their families.

Articles and Additional Resources
Importance of a Seizure Action Plan
Managing Acute Seizures: New Rescue Delivery Option and Resources to Assist School Nurses
School Nursing Evidence-based Clinical Practice Guideline: Students with Seizures and Epilepsy
That Long Pause was Really a Seizure: Understanding Epilepsy and Bullying
Thriving in College with Epilepsy: A Guide for Students
Thank you
The Seizure Preparedness for Camp Checklist section was made possible through the generous support of Neurelis.
