Note: Epilepsy Alliance America is currently part of a Cooperative Agreement with the CDC Epilepsy Program. The agreement started in September 2023. Epilepsy Alliance America manages a Learning Collaborative for other CDC Component 1 grantees to identify best practices for health care providers / epilepsy centers to use to systematically encourage individuals to participate in self-management programs.
Recently fired former CDC employee Rosemarie Kobau attended Tuesday’s rally with a sign pleading for the restoration of the CDC’s epilepsy program. After 25 years as a part of the program and 13 years as its team lead, Kobau did not expect to be spending her Tuesdays unemployed and begging for the continuation of epilepsy programming.
“We were supporting many programs and communities across the country and in partnership with large national organizations like the Epilepsy Foundation and the American Epilepsy Society,” Kobau said. “Now all of that work has been stopped.”
