Sharing your epilepsy story through writing can help raise awareness, combat misinformation, and inspire change. Whether you're sharing it with friends and family, a support group, or even the wider public, your story can be a source of education, comfort, and empowerment for others.

Begin with Your Why

Are you trying to raise awareness, seek support, or give a voice to those who may not be able to speak for themselves? Understanding your purpose will help you shape your narrative and make it more impactful.

Start with Your Diagnosis or Early Experiences

Share when you first learned about your epilepsy. How were you diagnosed? Describe the impact it had on your life at that moment.

Describe the Impact on Your Daily Life

Talk about how it has influenced your day-to-day life, including school, work, social interactions, or hobbies. Be specific and let your readers see what it’s like to live with epilepsy.

Include Moments of Struggle and Strength

Be open about the difficult moments while also highlighting moments of resiliency and strength.

Share the Emotional Journey

Share the difficult feelings that can often accompany an epilepsy diagnosis - fear, anxiety, embarrassment, or loneliness.

Talk About Support Systems

Sharing how a support network has made a difference in your journey can show others the importance of community and encouragement in managing epilepsy.

Discuss Treatments and Management

Share your personal experience with various treatments - medication, therapy, lifestyle changes, surgery - including what’s worked for you and what hasn’t.

Educate the Reader

Many people may not understand what epilepsy is, so providing information on its causes, symptoms, and treatment options can help raise awareness.

End with Hope or a Call to Action

Conclude your story on a positive or hopeful note. Share the ways you’ve found strength, used your story to empower others, or important lessons you’ve learned.