Epilepsy Alliance America

Epilepsy Alliance America is a national organization representing like-minded local, regional, statewide, and even other national agencies dedicated to serving the needs of people who live with seizures and epilepsy every day.

Epilepsy Alliance America National Community Local Solutions

Mission

A National Community, Building Local Solutions, for people impacted by epilepsy.

Vision

Everyone impacted by epilepsy can live their best lives.

Purpose

Providing hope and possibilities for individuals and families affected by epilepsy.

Core Values

Collaboration • Inclusion • Responsiveness • Compassion • Integrity

Our member organizations are committed to working in Collaboration, boldly advancing the mission and vision of Epilepsy Alliance America together.

We foster an environment of Inclusion where member organizations of all sizes and specialties are treated with the same respect, given the same representation and valued equally. We strive to provide the same environment for the families and individuals we serve throughout our network.

We value Responsiveness between our member organizations and to those they serve, actively listening and learning to improve the lives of people with epilepsy and their caregivers.

We lead with Compassion and empathy.

We demonstrate Integrity by fostering transparency, establishing accountability, and nurturing lasting relationships.

Founding Organizations

Epilepsy Alliance America was founded in 2018 by eight leading grassroots epilepsy organizations who are unified in their mission to provide direct support to people with epilepsy, and the people who care for them.  The founding member organizations of Epilepsy Alliance America are:  Epilepsy Alliance Florida, Epilepsy Alliance Louisiana, Epilepsy Alliance North Carolina, Epilepsy Alliance Ohio, Epilepsy Alliance West Central New York, Epilepsy Association of Western and Central Pennsylvania, Epilepsy Services of New Jersey and the Puerto Rican Epilepsy Society.

Member Organizations

Member organizations of Epilepsy Alliance America have been collectively supporting people with epilepsy for decades through support services, information, education, advocacy, and public awareness. As a result, the Alliance provides real epilepsy help to approximately 1 million Americans living with epilepsy.

You can also find more member information on the Current Members page.

The Sturge-Weber Foundation
LGS Foundation (Lennox-Gastaut Syndrome)
Dravet Syndrome Foundation
South Carolina Advocates for Epilepsy (S.A.F.E.)
Epilepsy Services Foundation (Tampa, Florida)
JoshProvides
Valley Children’s Healthcare:  Epilepsy Support Program (Madera, California)
Epilepsy Advocacy Network
Sofie’s Journey – Epilepsy Awareness Day at Disneyland Resort
Epilepsy Support Network of Orange County
Sociedad Puertorriqueña de Epilepsia
Epilepsy Services of New Jersey
Epilepsy Association of Western and Central Pennsylvania (PA)
Epilepsy Alliance West Central New York (a part of Empowering People’s Independence)
Epilepsy Alliance North Carolina
Epilepsy Alliance Ohio
Epilepsy Alliance Florida
Epilepsy Alliance Louisiana