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CONNECTIONS

Issue 58 July 2026

School Nurses are the Heart of Seizure Safety

School Nurses are the Heart of Seizure Safety 

Epilepsy Alliance America proudly attended the National Association for School Nurses (NASN) Annual Meeting in Las Vegas earlier this month. Providing information, resources and training materials to school nurses across the country helps keep students with epilepsy safer. School nurses are truly at the heart of seizure safety! 

 
National Plan for Epilepsy Graphic

Congress Needs to Hear YOUR Voice 

We are urging Congress to advance a long-overdue priority: the National Plan for Epilepsy. Other neurological conditions like Alzheimer’s, autism, and Parkinson’s already have national plans. Epilepsy still does not - and that needs to change.


Please take a few minutes to contact your members of Congress and ask them to support the National Plan for Epilepsy.

 

Summer Safety - Water Safety Videos  

Special thanks to Mike Radell from Epilepsy Alliance America member organization, Empowering People's Independence, for these videos. Mike shares important tips for staying safe in and around the water. People with epilepsy are at an elevated risk for drowning, so this is critical and life-saving information.
Visit our website for more water safety tips.   

Tips to Swim Safely

Play 

Seizures in Water

Play 

Water Safety

Play 
 

Back-to-School Tips

Back-to-School season is upon us! Seizure Action Plans need to be updated and shared. Prescriptions for Rescue Medications should be refilled. School personnel should be trained in Seizure Recognition and Response.  
Check out all of our Back-to-School tips at our website.   

Before school starts, meet with your child's teachers, school nurse, coaches, and other key staff to review their Seizure Action Plan, discuss any changes, and answer questions. A few minutes of preparation can help ensure everyone is ready to support your child throughout the school year. More back-to-school tips here.

 
A prepared school is a Safer School

A new school year is an opportunity to create a safer, more supportive environment for students with epilepsy. Preparation starts before the first bell rings. When teachers, school staff, and classmates know how to recognize and respond to a seizure, everyone benefits. More back-to-school tips here.

 
A Seizure Action Plan brings peace of mind

A Seizure Action Plan is more than a piece of paper, it’s peace of mind. Reviewing and updating a student's Seizure Action Plan before the school year begins helps ensure everyone is prepared from day one. More back-to-school tips here.

 
Not every seizure looks the same

Seizures are not only convulsions. Some may appear as brief staring spells, unusual movements, confusion, or sudden changes in awareness or behavior. Because seizures can present in many ways, recognizing the signs is an important part of keeping students safe.
Get trained and find more back-to-school tips here.

 

Back-to-School Webinar

Back to School webinar graphic

Join Epilepsy Alliance America and member organization, Epilepsy Advocacy Network, for a free Back-to-School Webinar featuring Dr. Douglas Nordli III, University of Chicago, Dr. Agilda Dema, University of Chicago, and Jessica Kreiser, Lighted Way Children’s Developmental Center.

We'll discuss how schools and families can work together to create safe, supportive, and inclusive learning environments for students with epilepsy, including seizure preparedness, school accommodations, and practical strategies for success.

Whether you're a parent, caregiver, educator, school nurse, or advocate, you'll leave with valuable tools and resources to help students with epilepsy thrive.

Wednesday, August 12, 2026
7:00 PM ET | 6:00 PM CT | 5:00 PM MT | 4:00 PM PT
Register today and join us! 

 

Local Solutions

Our member organizations provide solutions for people affected by epilepsy.

Camp Frog photo

Epilepsy Association of Western and Central Pennsylvania hosted Camp Frog, an overnight summer camp for children and teens with epilepsy.

EAN Golfers

Epilepsy Advocacy Network hosted its 15th annual Golf Outing, raising funds to help them continue to provide education, advocacy, support, and life-changing programs for those living with epilepsy in Illinois. 

 

On July 18, 2026, Epilepsy Alliance America celebrated
our EIGHT YEAR anniversary. 

Epilepsy Alliiance America - 8 years strong
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