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CONNECTIONS

Issue 55: April 2026

Group photo of EAA member org representatives

 Member Organizations Come Together    

Last month, representatives from many of our member organizations traveled to New Brunswick, NJ for our third annual Member Organization Meeting. This is a valuable time of learning, collaborating, and networking that we look forward to each year!

 

Some of the highlights were a screening of the movie Under the Lights and a chance to meet the filmmaker Miles Levin, learning sessions around the topics of marketing, program planning, and AI for nonprofits, and, a reception dinner recognizing sponsors, board members, and Epilepsy Alliance America member representatives. Learn more about the meeting here. 

 
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Epilepsy Awareness Day at Disneyland Impact   

Epilepsy Alliance America proudly sponsored two families to attend Epilepsy Awareness Day at Disneyland in November, 2025. Watch as Hannah, Sam's mom, shares his story. He is a young man living with epilepsy and Glut-1 Deficiency Syndrome. Learn why attending this event was so meaningful to their entire family. 

 

Epilepsy Alliance America is a proud National Partner of the first-ever Epilepsy Awareness Day at Disney World which will be held this weekend in Florida. If you are going to be there, be sure to stop by our booth!  

 

Learn about Stigma & Mental Health in Epilepsy

May is Mental Health Awareness Month. Join us for a webinar to learn how epilepsy‑related stigma affects confidence, connection, and well‑being. Dr. Elaine Kiriakopoulos of Dartmouth Health will share strategies to strengthen mental health on Tuesday, May 26 at 6:30 pm ET. Register here. 

 

National Professional Advisory Committee: New Leadership

National Professional Advisory Committee group photo

Epilepsy Alliance America extends its deep appreciation to Dr. Anto Bagic for nearly four years of leadership as the inaugural chair of our National Professional Advisory Committee. His guidance in shaping this multidisciplinary group of epilepsy experts has created a strong foundation for a seamless transition to our incoming chair, Dr. Kevin Rathke of Duke University.

NPAC Updates
 

In case you missed it 

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Along with member organization Empowering People's Independence, we recently hosted a webinar on Summer Camp Prep. Watch Mike Radell, Education Coordinator and Camp Director, as he shares tips and resources to prepare for a fun and safe summer camp experience. 

 
Lorna Myers Scholarship Fund

Epilepsy Alliance America manages a scholarship program for students with a diagnosis of Psychogenic Non-Epileptic Seizures (PNES) who are pursuing higher education.

Applications can be found here:
Lorna Myers Scholarships for Students with PNES.
Completed applications are due by April 30, 2026.

 
Graphic for One More Step Grant Program

Our friends at Sail for Epilepsy are now accepting applications for the One More Step Grant Program. These grants provide financial support to individuals who need extra resources to pursue goals such as learning new skills, improving health, raising awareness, educating others, or supporting a family member’s journey.

Learn more and submit a proposal
Applications are due by May 8, 2026.

 

Local Solutions

Our member organizations provide solutions for people affected by epilepsy.

Sandi & Lisa at JoshProvides dinner and auction event

JoshProvides held their 8th annual Interactive Dinner and Auction on April 15. Epilepsy Alliance America Executive Director, Lisa Gallipoli, pictured here with JoshProvides founder, Sandi Chapnick, was able to attend!

This event helps provide support for medical travel grants, seizure device and seizure alert dog assistance that  JoshProvides awards to people impacted by epilepsy all year long. 

Rebecca standing at information table

Rebecca from Epilepsy Association of Western and Central Pennsylvania recently hosted an information table at the Woodlands Foundation SNC Summer Fun Fair to share information about Camp Frog.

If you have a child with epilepsy who would like to experience summer camp, many of our member organizations host camps that can be found on our event calendar. Take a look at our summer camp safety tips while you're there! 

Testimonial from Epilepsy Support Network of Orange County
 
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