Seizure Safety Information
WATER SAFETY for people who have seizures.
Summer can bring a unique set of challenges in Seizure Management.
Check out our Seizure Safety Tips for Summer.
Update your Seizure Action Plan (SAP)
Discuss your Seizure Action plan with your doctor and have them sign off on the document.
Take the time to discuss rescue medication options available to you and incorporate in your Seizure Action Plan
Prepare Your Camp
- Seizure Recognition and First Aid Training – Ensure that all staff at the camp are trained in Seizure Recognition and First Aid. Download and Provide Posters for Camp if they do not have them available.
- Schedule a meeting with Camp Staff to discuss any accommodations needs and the Seizure Action Plan.
- When possible, meet the counselors and other camp personnel who will have the most contact with your child. Share their Seizure Action Plan with them but ‘bring it to life’ with other information including what is ‘typical’ for your child.
- Make sure your child’s camp / bunk is prepared. Do they have a seizure comfort kit? It could include a pillow, a blanket, an extra set of clothing, a special snack, or anything else to help your child post-seizure. If they are sleeping in a bunk make sure they are on a lower-level bunk and in a location that has easy access if they need assistance (perhaps near the door)
- Complete any forms required for medication – including Anti-Seizure Drugs, (ASDs) as well as Rescue Medications.
Educate Fellow Campers / Bunkmates
Work with your camp to educate fellow campers about Epilepsy and Seizures. Education is key to reducing stigma.
Seizure ID Products
Ensure that you have a wearable item to indicate to people that you have epilepsy in case you have a seizure in a setting without people who know you have epilepsy. Epilepsy Alliance America can provide a $35 coupon to individuals with epilepsy towards a product from GetMyId.com.
Get Support
Epilepsy can too often be an isolating condition. Consider finding a support group for you and your family.
Learn more about the Member Organizations of Epilepsy Alliance America and the programs and services they offer to people with epilepsy and their families.
Articles and Additional Resources
Importance of a Seizure Action Plan
That Long Pause was Really a Seizure: Understanding Epilepsy and Bullying
Epilepsy, seizures, physical exercise, and sports: A report from the ILAE Task Force on Sports and Epilepsy
Time to Talk about Seizures and Rescue Medications
Visit the Seizure Action Plan Coalition website for more tools and resources
The Seizure Preparedness for Camp Checklist section was made possible through the generous support of Neurelis.
