Epilepsy Alliance America National Community Local Solutions logo

CONNECTIONS

Issue 53: February 2026

What is a Seizure Action Plan

 Seizure Action Plan Awareness Week   

More than 85 awareness partners joined Epilepsy Alliance America in spreading the important messages about Seizure Action Plans during Seizure Action Plan Awareness Week.

 

Having a Seizure Action plan is important. Sharing your Seizure Action Plan is critical. Download the Seizure Action Plan Discussion Guide to help you and your family and friends start these important conversations.   

Seizure Action Plan Discussion Guide 
 
Genetics and Epilepsy

 Genetics & Epilepsy   

Join Epilepsy Alliance America and member organization, Epilepsy Alliance Louisiana, on Thursday, February 26, for a live webinar with Dr. Chad Mac Manuel of Our Lady of the Lake Children’s Hospital.

 

Discover how groundbreaking genetic research is transforming epilepsy care and shaping personalized treatment plans for children.

 

Thursday, February 26, 2026
7:00pm ET / 6:00pm CT / 4:00pm PT

Register Here

 

In case you missed it 

Epilepsy Awareness Day at Disney World
Lorna Myers Scholarship Fund

Epilepsy Alliance America is a proud National Partner of the first-ever Epilepsy Awareness Day at Disney World which will be held in April, 2026.

Applications are available for the Lorna Myers Scholarships for Students with PNES.
Completed applications are due by April 30, 2026.

 
Play 

Seizure Recognition and Response Training 
This training was led by Jason Raether, MSN, RN - a dedicated school nurse and a person living with epilepsy. His dual perspective brings both professional expertise and lived experience, making this session especially meaningful for caregivers, educators, and anyone who wants to be prepared to help.

 
Play 

Seizure Detection Devices 101
We partnered with the Danny Did Foundation to host Seizure Detection Devices 101, a practical webinar focused on the fundamentals of seizure detection technology.
This session explores how detection tools work, who they can support, and how detection technology fits into seizure action planning and overall safety. It’s designed for caregivers, clinicians, educators, and individuals living with epilepsy.

 
Play 

Pregnancy and Epilepsy
Epilepsy Alliance America and member organization, Epilepsy Advocacy Network, joined with Dr. Sandra Rose, University of Chicago, and Amy Lyons, North American Anti-Epileptic Drug Pregnancy Registry, to discuss epilepsy related pregnancy concerns and how women can make informed decisions.

 

Local Solutions

Our member organizations provide solutions for people affected by epilepsy.

Smiling family of three at a valentines day themed paint night

Valley Children's Healthcare Epilepsy Support Program hosted a Valentine's Family Paint Night that brought families together for an evening of creativity, connection, and support. 

Puerto Rico Advocacy Day

The Puerto Rican Epilepsy Society held its 3rd Day of Intercession in the Capitol, a space of dialogue and action where people with epilepsy, other developmental disabilities and their family members, had the opportunity to listen to the proposals of legislators and, in turn, present their needs to drive changes in public policy.

 
 Donate Today
 
FacebookInstagramLinkedInYouTube

Our Contact Information
*{{Organization Name}}*
*{{Organization Address}}*
*{{Organization Phone}}*
*{{Organization Website}}*

*{{Unsubscribe}}*

Epilepsy Alliance America National Community Local Solutions logo

Learn more about

Membership Opportunities

Member Organizations