| CONNECTIONS Issue 53: February 2026 |
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Seizure Action Plan Awareness Week |
More than 85 awareness partners joined Epilepsy Alliance America in spreading the important messages about Seizure Action Plans during Seizure Action Plan Awareness Week. Having a Seizure Action plan is important. Sharing your Seizure Action Plan is critical. Download the Seizure Action Plan Discussion Guide to help you and your family and friends start these important conversations. |
Join Epilepsy Alliance America and member organization, Epilepsy Alliance Louisiana, on Thursday, February 26, for a live webinar with Dr. Chad Mac Manuel of Our Lady of the Lake Children’s Hospital.
Discover how groundbreaking genetic research is transforming epilepsy care and shaping personalized treatment plans for children. Thursday, February 26, 2026 7:00pm ET / 6:00pm CT / 4:00pm PT
Register Here |
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| Seizure Recognition and Response Training
This training was led by Jason Raether, MSN, RN - a dedicated school nurse and a person living with epilepsy. His dual perspective brings both professional expertise and lived experience, making this session especially meaningful for caregivers, educators, and anyone who wants to be prepared to help. |
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| Seizure Detection Devices 101 We partnered with the Danny Did Foundation to host Seizure Detection Devices 101, a practical webinar focused on the fundamentals of seizure detection technology.
This session explores how detection tools work, who they can support, and how detection technology fits into seizure action planning and overall safety. It’s designed for caregivers, clinicians, educators, and individuals living with epilepsy. |
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| Pregnancy and Epilepsy
Epilepsy Alliance America and member organization, Epilepsy Advocacy Network, joined with Dr. Sandra Rose, University of Chicago, and Amy Lyons, North American Anti-Epileptic Drug Pregnancy Registry, to discuss epilepsy related pregnancy concerns and how women can make informed decisions. |
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Our member organizations provide solutions for people affected by epilepsy. |
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Valley Children's Healthcare Epilepsy Support Program hosted a Valentine's Family Paint Night that brought families together for an evening of creativity, connection, and support. |
| The Puerto Rican Epilepsy Society held its 3rd Day of Intercession in the Capitol, a space of dialogue and action where people with epilepsy, other developmental disabilities and their family members, had the opportunity to listen to the proposals of legislators and, in turn, present their needs to drive changes in public policy. |
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