CONNECTIONS

Issue 47: SUDEP Action Day 2025

Hope Begins with a Conversation

Today is SUDEP Action Day, and we’re joining partners from around the world to raise awareness about SUDEP (Sudden Unexpected Death in Epilepsy).

This year’s theme, Hope Begins with a Conversation, empowers all of us to talk openly about SUDEP risks and prevention. Every conversation can be a step toward safety, understanding, and hope.

Learn more about SUDEP

Conversations with Providers

People living with epilepsy, and their families, deserve clear, compassionate information about SUDEP and epilepsy-related risks. Awareness leads to informed choices and safer lives.

It is important to talk to your physician about your risk of SUDEP.

Download information about next steps if your doctor determines your child is at either Low Risk or Increased Risk.

Talking about SUDEP isn't frightening; it’s a vital step toward safety and understanding.

Conversations with College Students

Real Talk: Navigating College with Epilepsy is a student-focused guide designed to support young adults living with epilepsy as they transition to campus life.

Developed by Epilepsy Alliance America in collaboration with Paul’s Purple Warriors and Seizure Prepared U, this resource covers SUDEP risk reduction, mental health, seizure safety planning, and essential conversations with roommates, campus staff, and healthcare providers.

With practical tips, dorm safety checklists, and tools for self-advocacy, it empowers students to stay safe, informed, and connected throughout their college journey.

Our partners are sharing SUDEP resources

Our partners at the National Association of School Nurses (NASN) provide training to support students nationwide.

Epilepsy Care Considerations for School Nurses: Stigma and SUDEP: Learn more

Mental Health Toolkit for School Nurses Caring for Students with Epilepsy: Access the toolkit

The 2025 PAME meeting will be held at the Omni Atlanta Hotel at Centennial Park in Atlanta, GA, on December 4, 2025, with the family session on December 3.

Check out the program.

Knowledge is Power.

Registration is open for BOTH Epilepsy Awareness Day at Disneyland in November, 2025 and Disney World in April, 2026!

Learn more at our partners' websites.
https://epilepsyawarenessday.org/
https://epilepsyawarenessdayfl.org/

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