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CONNECTIONS

Issue 42: May 2025

The Campaign for a National Plan for Epilepsy

Take Action: National Plan for Epilepsy 

Never has a coordinated effort around epilepsy been more important!

If passed by Congress and signed into law by the President, this bill will direct the federal government to develop a National Plan for Epilepsy. This plan will enable the federal coordination necessary to ensure better outcomes for people with epilepsy and prioritize the development of more effective epilepsy treatments.

Write or Call your Members of Congress Today
 
Join us at the Purplest Place on Earth

Epilepsy Awareness Day at Disneyland 2025  

Consider joining Epilepsy Alliance America at the Epilepsy Expo and Awareness Day at Disneyland in November 2025. Help us make the the happiest place on Earth the purplest! Applications are now being accepted to receive finanancial assistance from Epilepsy Alliance America to attend the event.  

Learn more about the event and application process here. The families Epilepsy Alliance America supported to attend in 2024 had incredible experiences.Check out their stories today. 

Dildine Family Video 
Zagami Family Video 
 

In case you missed it...  

Play 

In recognition of Nurses Week, Inna Hughes, Md, PhD, Associate Professor of Child Neurology and Epilepsy at the University of Rochester, led our quarterly virtual live Seizure Recognition and Response Training.  

 
Take advocacy action

Learn more about the sweeping government budget cuts and what they mean for epilepsy.  

The future of the CDC Epilepsy Program is unclear. These staff reductions will halt progress in preventing, treating and managing epilepsy.

If you have not already, please take action today and let your members of Congress know that you want them to stand up for the 3.4 million Americans living with epilepsy. 

 
Seizure Prepared U

The Seizure Prepared U seal sets your community apart as a leader in student safety and inclusion.

Join a growing network of colleges taking proactive steps to ensure students with epilepsy can thrive academically and socially in a supportive environment. Make your campus safer, more welcoming, and more attractive to prospective students.  Enroll today!

 

Local Solutions

EPI staff members in Albany
EAN Staff on the news for Camp Possible

Empowering People's Independence in New York participated in a State Advocacy Day in Albany, NY, on May 12.  

 

Epilepsy Advocacy Network was featured on a local news show gearing up for their CamPossible this June. 

 
Health Hearts photographs of participants
Room for Friends

Epilepsy Services of New Jersey held an impactful Healing Hearts Program for families who have lost a loved one to epilepsy.

Valley Children's Healthcare Epilepsy Support Program recently launched "Room for Friends: A Story to to Empower Kids with Epilepsy." 

 
 Donate Today
 
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