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CONNECTIONS

Issue 43: June 2025

Photos of 2025 PNES Scholarship Winners

Celebrating Scholarship Winners   

In May 2025, Epilepsy Alliance America awarded ten scholarships totaling $14,250. Over the last five years, Epilepsy Alliance America has provided support to 52 students with PNES in more than 20 states. Learn more here.   

 
Graphic for summer safety webinar

 Summer Safety Webinar - Register Now

Summer is here - are you seizure safe?

 

Join Epilepsy Alliance America and member organization Epilepsy Services of New Jersey for a free webinar full of expert tips on water safety, camp readiness, and managing epilepsy all summer long.

 

Wednesday, June 25
12pm –1pm EST
Register now 

 

Epilepsy Awareness Day at Disneyland 2025  

Consider joining Epilepsy Alliance America at the Epilepsy Expo and Awareness Day at Disneyland in November 2025. Help us make the happiest place on Earth the purplest!

Save the Date Epilepsy Awareness Day at Disneyland

DEADLINE IS FRIDAY, JUNE 20. Applications are now being accepted to receive financial assistance from Epilepsy Alliance America to attend the event. Learn more about the event and application process here.

Families supported by Epilepsy Alliance America in 2024 shared incredible experiences.

Dildine Family Video 
Zagami Family Video 
 

In case you missed it...  

The Campaign for the National Plan for Epilepsy

National Plan for Epilepsy

Epilepsy Alliance America recently completed a weeklong social media campaign, highlighting the necessity and importance of a National Plan for Epilepsy. This plan would lead to a federal investment in epilepsy and bring much-needed resources and relief to families across the country. You can urge your members of Congress to cosponsor and pass the bill here.

 
Play 

Time to Talk About Epilepsy

CMEology's educational initiative, Time To Talk About Epilepsy and Seizures, aims to enable, empower, and prepare people with epilepsy, their families/caregivers, and healthcare providers to have productive and meaningful conversations about responding to seizures and using rescue therapies. Check out their YouTube channel for a video series featuring actors and individuals with epilepsy, covering important topics such as brain health, seizure action plans, rescue therapies, and more.

 

 
Seizure Prepared U

Make your Campus Safer

The Seizure Prepared U seal sets your community apart as a leader in student safety and inclusion.

Join a growing network of colleges taking proactive steps to ensure students with epilepsy can thrive academically and socially in a supportive environment. Make your campus safer, more welcoming, and more attractive to prospective students. Enroll today!

 

Local Solutions 

Epilepsy Alliance Ohio staff members at a golf tournament
Runners at Epilepsy Association of Western and Central PA's Pittsburgh Fun Run

Epilepsy Alliance Ohio hosted the Taylor Huth Memorial Golf Tournament which  remembers the fun-loving spirit of Taylor Huth, who began having seizures in high school and passed away at an early age. 

Epilepsy Association of Western and Central Pennsylvania had a great day at their Pittsburgh Family Fun Run for Epilepsy! 

 

 
Electric Minds swag
Room for Friends cover

Epilepsy Alliance America friends, Electric Minds, held a benefit concert in Nashville, in partnership with member organization SAFE - South Carolina Advocates for Epilepsy. The proceeds will help sponsor a deserving family to attend Epilepsy Awareness Day at Disneyland. 

Valley Children's Healthcare Epilepsy Support Program recently launched Room for Friends: A Story to Empower Kids with Epilepsy.

Learn how you can be part of the launch team here.

 
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