CONNECTIONS 

Issue 23, September 2023

Member Organization Spotlight  

Epilepsy Alliance Western and Central New York (part of Empowering People's Independence) is a founding member of Epilepsy Alliance America. From residential group homes to educational services to fun events, they are dedicated to supporting and uniting the epilepsy community with our wide variety of programs and services. Watch and learn more about their programs and services.

The Sturge Weber Foundation joins Epilepsy Alliance America  

The Sturge-Weber Foundation (SWF) joined Epilepsy Alliance America as a non-profit member in August 2023, becoming the 18th organization in our growing network. You can learn about SWF's global mission to improve the quality of life and care for people with Sturge-Weber syndrome and associated Port-Wine Birthmark conditions through tenacious collaboration with clinical partners and pioneers, education, advocacy, research, and friendly support at their website.  

Epilepsy Awareness Day is just a few weeks away!  

Are you attending Epilepsy Awareness Day at Disneyland?  Do you have questions about the event? Watch the Q&A video we hosted with Sofie's Journey on September 7. 

Special Considerations for Women with Epilepsy Webinar  

Thursday, October 12: 12:00 – 1:00 PM

Register at: http://go.rutgers.edu/Oct12Epilepsy

Dipali Nemade, MD, MPH, will address considerations specific to women who have epilepsy, including how hormonal changes affect girls and women with epilepsy, how ASMs (anti-seizure medications) may impact birth control, and special considerations before, during, and after pregnancy. Discussions will also include issues for mature women with epilepsy, including menopause and bone health. There will be ample time for questions and answers.

Did you miss our August webinar about Seizure Action Plans and Seizure First Aid? You can watch the recording here. 

Seizure Recognition and First Aid Training - Your Way 

Learn more about Seizure Recognition and First Aid Training - available in-person and virtually by our member organizations - and On Demand - 24/7 on our website.  

S.T.E.P.S Discussion Guide  
With the right S.T.E.P.S. you can have stronger conversations with your healthcare provider and work together to reach your goals. Download the S.T.E.P.S Discussion Guide. 

Seizure Action Plans

A seizure is a medical emergency. A Seizure Action Plan lets others know what to do in an emergency situation.

Learn more today.

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