Epilepsy Alliance America, in partnership with Epilepsy Advocacy Network, hosted a webinar: Transition of Care.
The webinar was held on August 14, 2024.
The panelists discussed how to care for your child with epilepsy as they transition from pediatric to adult medical care, as well as other potentially complex legal issues such as Social Security and Guardianship / Trusts. Caregivers of individuals with epilepsy provided their personal experiences going through the transition of care process for their own children.
Topics covered included:
Medical Transition from Pediatric to Adult Care
Naoum Issa, MD, PhD
Epileptologist
University of Chicago
Resources to Consider: Government and other benefits to look into
Megan Forstill
Public Affairs Specialist
Social Security Administration
Resources to Consider: Guardianship of your adult child
Mike Gulo
Attorney
MG Gulo & Associates, Ltd.
Testimonials from parents who have gone through the transition from childhood to adulthood with a child with epilepsy
Tracy Dixon-Salazar, PhD & Jen Griffin
The LGS Foundation
Self-care for the Life-Long Caregiver
Tracy Dixon-Salazar, PhD & Jen Griffin
The LGS Foundation
You can watch the presentations below.
Medical Transition from Pediatric to Adult Care
Naoum Issa, MD, PhD
Resources to Consider: Government and other benefits to look into
Megan Forstill
Resources to Consider: Guardianship of your adult child
Mike Gulo
Testimonials from parents who have gone through the transition from childhood to adulthood with a child with epilepsy
Tracy Salazar and Jen Griffin
Self-care for the Life-Long Caregiver
Tracy Salazar and Jen Griffin
This production of this webinar is made possible through the financial support of Jazz Pharmaceuticals.
Please note that the content of the presentation is solely at the discretion of our speakers, Epilepsy Alliance America, and Epilepsy Advocacy Network.
Page updated August 15, 2024