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X-WR-CALNAME:Epilepsy Alliance America
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X-WR-CALDESC:Events for Epilepsy Alliance America
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DTSTART;TZID=America/New_York:20250625T120000
DTEND;TZID=America/New_York:20250625T130000
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CREATED:20250611T191351Z
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UID:10001674-1750852800-1750856400@epilepsyallianceamerica.org
SUMMARY:Summer Safety Webinar
DESCRIPTION:Join Epilepsy Alliance America and member organization Epilepsy Services of New Jersey for a free webinar full of expert tips on water safety\, camp readiness\, and managing epilepsy all summer long. \nTopics Covered: \n• How summer heat\, sleep changes\, and activities impact seizure risk\n• Tips for summer camps\n• Hydration\, sun exposure\, and medication management best practices\n• Swimming and outdoor safety\n• Seizure first aid and emergency planning\n• Resources to help you stay safe and informed
URL:https://epilepsyallianceamerica.org/event/summer-safety-webinar/
CATEGORIES:Virtual Education Program
ATTACH;FMTTYPE=image/png:https://epilepsyallianceamerica.org/wp-content/uploads/2025/01/Webinar.png
ORGANIZER;CN="Epilepsy Alliance America":MAILTO:admin@epilepsyallianceamerica.org
LOCATION:bit.ly/EpilepsySummerSafety
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250509T140000
DTEND;TZID=America/New_York:20250509T150000
DTSTAMP:20250624T200103Z
CREATED:20250425T194433Z
LAST-MODIFIED:20250624T200103Z
UID:10001550-1746799200-1746802800@epilepsyallianceamerica.org
SUMMARY:Live Virtual Seizure First Aid Training
DESCRIPTION:This training\, facilitated by Dr. Inna Hughes of the University of Rochester School of Medicine & Dentistry and member of Epilepsy Alliance America’s National Professional Advisory Committee\, covered epilepsy basics\, seizure recognition and response\, and information about how to keep students with epilepsy safe in honor of School Nurses Week!
URL:https://epilepsyallianceamerica.org/event/live-virtual-seizure-first-aid-training-2/
CATEGORIES:Training,Virtual Education Program
ATTACH;FMTTYPE=image/png:https://epilepsyallianceamerica.org/wp-content/uploads/2025/03/SFA-Training.png
ORGANIZER;CN="Epilepsy Alliance America":MAILTO:admin@epilepsyallianceamerica.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241119T180000
DTEND;TZID=America/New_York:20241119T200000
DTSTAMP:20241118T172033Z
CREATED:20241101T143622Z
LAST-MODIFIED:20241118T172033Z
UID:10000284-1732039200-1732046400@epilepsyallianceamerica.org
SUMMARY:Family Dance Party at Disneyland Hotel
DESCRIPTION:  \nJoin us for Epilepsy Awareness Day at Disneyland’s Family Dance Party! See below for more info. Scroll all the way down to RSVP! \nWHAT TO WEAR (IN ADDITION TO YOUR DANCING SHOES!)\nGet in the Disney spirit with us! We encourage you to bring your favorite Disney attire and wear it to the event! Disney costumes are allowed for children under 14. Adults are encouraged to wear their favorite Disney attire or outfits inspired by their favorite character.  We will have props and accessories available for those who want them!  We will have tiaras for our future princesses;  capes for our superheroes in-training\, and other fun accessories for both kids and the young-at-heart adults! Please avoid bringing any accessories with flashing or blinking lights. \nWhatever you decide to wear\, make sure you will be comfortable wearing it on the Dance Floor! \nFor more information about what Disney attire is allowed at Disneyland and on the property of the Disneyland hotel\, check here. \nREFRESHMENTS WILL BE PROVIDED\nA limited selection of food and beverages will be available. If you have dietary concerns\, you are welcome to bring your own snacks and beverages with you. \nSOUVENIR PHOTOGRAPHS\nWe will have a photography booth again.  Individuals and families can have their photos taken by professional photographer\, Brian Kramer\, and leave with a PRINTOUT of their photo to remember the Dance Party. \nACCESSIBILITY\nThe Dance Party is accessible for those who use wheelchairs and other mobility devices. Service dogs are permitted. \nQUIET AREA\nNEW THIS YEAR we have rented a system called “Quiet Dance Party”.  Users who would like to be in the Dance Party room but need a little less noise can use one of the headsets provided to have either noise cancellation or a lower volume of music than the DJ is playing.  You will be able to check out and return the devices used at the event as needed.  Individuals who need to leave the party for less noise or stimulation can do so as needed and re-enter as many times as needed. \nSEIZURE SAFETY\nRemember to bring your your medications with you to the event\, including any rescue medications. Don’t leave them back in the hotel room! \n 
URL:https://epilepsyallianceamerica.org/event/family-dance-party/
LOCATION:Disneyland Hotel\, 1150 W Magic Way\, Anaheim\, CA\, 92802\, United States
CATEGORIES:Connection Program / Activity
ATTACH;FMTTYPE=image/jpeg:https://epilepsyallianceamerica.org/wp-content/uploads/2024/11/EADDL-Dance-Party-Invite-FINAL-169-NEW-1.jpg
ORGANIZER;CN="Epilepsy Alliance America":MAILTO:admin@epilepsyallianceamerica.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241106T180000
DTEND;TZID=America/New_York:20241106T190000
DTSTAMP:20250702T190303Z
CREATED:20241101T141943Z
LAST-MODIFIED:20250702T190303Z
UID:10000223-1730916000-1730919600@epilepsyallianceamerica.org
SUMMARY:Seizure Recognition and Response Training - Spanish
DESCRIPTION:Watch the recording of the Seizure Recognition and Response Training\, held in Spanish by Dr. Giancarlo Lugo from Valley Children’s Healthcare\, one of our member organizations. \n \n 
URL:https://epilepsyallianceamerica.org/event/live-virtual-seizure-first-aid-training-spanish/
CATEGORIES:Training,Virtual Education Program
ATTACH;FMTTYPE=image/png:https://epilepsyallianceamerica.org/wp-content/uploads/2025/03/SFA-Training.png
ORGANIZER;CN="Epilepsy Alliance America":MAILTO:admin@epilepsyallianceamerica.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241104T180000
DTEND;TZID=America/New_York:20241104T190000
DTSTAMP:20241105T173015Z
CREATED:20241014T115734Z
LAST-MODIFIED:20241105T173015Z
UID:10000222-1730743200-1730746800@epilepsyallianceamerica.org
SUMMARY:Virtual Seizure First Aid Training
DESCRIPTION:We kicked off Epilepsy Awareness Month by offering a Virtual seizure first aid training led by Kelly Connor\, PhD\, PA-C. \nYou can watch the recording on our Your Tube Channel. \n 
URL:https://epilepsyallianceamerica.org/event/live-virtual-seizure-first-aid-training/
CATEGORIES:Training
ATTACH;FMTTYPE=image/png:https://epilepsyallianceamerica.org/wp-content/uploads/2024/10/SeizureFirstAidKelly-600x503-1.png
ORGANIZER;CN="Epilepsy Alliance America":MAILTO:admin@epilepsyallianceamerica.org
LOCATION:https://youtu.be/G5YkaNeVsuE?si=2ozfi9bIsn06fNxx
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240822T190000
DTEND;TZID=America/New_York:20240822T200000
DTSTAMP:20250701T170744Z
CREATED:20250625T150930Z
LAST-MODIFIED:20250701T170744Z
UID:10001676-1724353200-1724356800@epilepsyallianceamerica.org
SUMMARY:Back to School Webinar 2024
DESCRIPTION:Epilepsy Alliance America and Epilepsy Alliance Louisiana’s Back To School Webinar covers important topics for students with epilepsy\, such as seizure action plans\, rescue medications\, learning plans\, and self advocacy.
URL:https://epilepsyallianceamerica.org/event/back-to-school-webinar-2024/
CATEGORIES:Virtual Education Program
ATTACH;FMTTYPE=image/png:https://epilepsyallianceamerica.org/wp-content/uploads/2025/01/Webinar.png
ORGANIZER;CN="Epilepsy Alliance America":MAILTO:admin@epilepsyallianceamerica.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240814T190000
DTEND;TZID=America/New_York:20240814T203000
DTSTAMP:20250625T151548Z
CREATED:20240907T000343Z
LAST-MODIFIED:20250625T151548Z
UID:10000197-1723662000-1723667400@epilepsyallianceamerica.org
SUMMARY:Transition of Care Webinar
DESCRIPTION:Resources & support for caregivers helping loved ones transition to adult care or lifelong care. \nWhen it comes to transitioning a loved one with epilepsy from pediatric care to adult care or making decisions in light of our loved ones’ need for lifelong care\, the necessary steps can be confusing and overwhelming. This informative webinar that features a panel of experts who share on topics that are key to the transition of care process. \nThis webinar can be viewed here. \n \n  \nThank you to member organization Epilepsy Advocacy Network for coordinating and co-hosting this event.  \nThis production of this webinar is made possible through the financial support of Jazz Pharmaceuticals.\nPlease note that the content of the presentation is solely at the discretion of our speakers\, Epilepsy Alliance America\, and Epilepsy Advocacy Network.
URL:https://epilepsyallianceamerica.org/event/transition-of-care-webinar/
CATEGORIES:Virtual Education Program
ATTACH;FMTTYPE=image/png:https://epilepsyallianceamerica.org/wp-content/uploads/2025/01/Webinar.png
ORGANIZER;CN="Epilepsy Alliance America":MAILTO:admin@epilepsyallianceamerica.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240610T190000
DTEND;TZID=America/New_York:20240610T203000
DTSTAMP:20250625T151504Z
CREATED:20240430T164518Z
LAST-MODIFIED:20250625T151504Z
UID:10000100-1718046000-1718051400@epilepsyallianceamerica.org
SUMMARY:CARE for Caregivers: A dialogue with Marc Palmieri
DESCRIPTION:CARE for Caregivers\nSupport for those who provide care to people with epilepsy  \nCaring for someone who is living with epilepsy can be challenging.\nWatch and hear from Marc Palmieri\, a masterful storyteller\, but most importantly\, the parent of a child with epilepsy. \n \nAbout She Danced with Lightning: \n“Marc Palmieri is a masterful storyteller. She Danced with Lightning is a beautifully rendered memoir of a young family in crisis and a marriage challenged on the path to healing. When Anna\, Marc and Kristen’s infant\, experiences seizures\, the family embarks on a medical and emotional  odyssey that will require a steadfast love and determination to cope with all that lies ahead.  A resplendent story filled with hope. Brava.”\n-Adriana Trigiani\, bestselling author of The Good Left Undone \n“An earnest and personal perspective on one family’s medical struggles…Palmieri writes well\, using vivid sensory descriptors to immerse readers…He also logically weaves in his own personal story into the narrative…he honestly tells of trying to find himself while also being a caring father.”\n– Kirkus Reviews \n \nThis production of this webinar is made possible through the financial support of Jazz Pharmaceuticals.\nPlease note that the content of the presentation is solely at the discretion of Marc Palmieri and Epilepsy Alliance America.
URL:https://epilepsyallianceamerica.org/event/care-for-caregivers-a-dialogue-with-marc-palmieri/
CATEGORIES:Virtual Education Program
ATTACH;FMTTYPE=image/png:https://epilepsyallianceamerica.org/wp-content/uploads/2025/01/Webinar.png
ORGANIZER;CN="Epilepsy Alliance America":MAILTO:admin@epilepsyallianceamerica.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230804T080000
DTEND;TZID=America/New_York:20230804T170000
DTSTAMP:20250701T170932Z
CREATED:20250625T151236Z
LAST-MODIFIED:20250701T170932Z
UID:10001677-1691136000-1691168400@epilepsyallianceamerica.org
SUMMARY:Off to College: A Guide For Students With Epilepsy
DESCRIPTION:Epilepsy Alliance America’s “Off to College: A Guide for Students with Epilepsy” webinar aired live on August 4\, 2023. \nThe transition to college is a major milestone for young adults and their families. Epilepsy affects each person differently and college brings new factors that might not have been previously encountered. As you plan for college\, developing a personalized plan for managing your seizures and your learning needs can help you to get the most out of the college experience both in and out of the classroom. Our experts are here to help you and your family plan accordingly. The featured speakers are Dr. Nicole Hartmann\, Epileptologist\, from Laurenceville Neurology in New Jersey and Dr. David Nast\, Director of the Office of Specialized Services at Ramapo College of New Jersey. The webinar was produced by Epilepsy Alliance America in partnership with member organization\, Epilepsy Services of New Jersey. Neurelis provided funding to Epilepsy Alliance America to host and produce this webinar. All of the content provided was that of the speakers\, Epilepsy Services of New Jersey and Epilepsy Alliance America.
URL:https://epilepsyallianceamerica.org/event/off-to-college-a-guide-for-students-with-epilepsy/
CATEGORIES:Virtual Education Program
ATTACH;FMTTYPE=image/png:https://epilepsyallianceamerica.org/wp-content/uploads/2025/01/Webinar.png
ORGANIZER;CN="Epilepsy Alliance America":MAILTO:admin@epilepsyallianceamerica.org
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