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DTSTART;VALUE=DATE:20220514
DTEND;VALUE=DATE:20220515
DTSTAMP:20260405T154433
CREATED:20220228T154152Z
LAST-MODIFIED:20220307T204112Z
UID:10000153-1652486400-1652572799@epilepsyallianceamerica.org
SUMMARY:Fundraising Event of our Member Organization\, Epilepsy Alliance North Carolina:  3rd Annual Electric Disc Connection Golf Tournament
DESCRIPTION:3rd Annual Electric Disc Connection Golf Tournament @ Patriot Disc Golf Course \nPDGA-Sanctioned \n1 Round\, C-Tier\, Singles \nRegistration opens April 10th at 7pm \nRegister here: https://www.discgolfscene.com/tournaments/3rd_Annual_Electric_Disc_Connection_2022 \nProceeds benefit Epilepsy Alliance North Carolina
URL:https://epilepsyallianceamerica.org/event/disc-golf-tournament/
LOCATION:Patriot Disc Golf Course\, 9652 West Market Street\, Kernersville\, NC\, United States
ATTACH;FMTTYPE=image/jpeg:https://epilepsyallianceamerica.org/wp-content/uploads/2022/02/3rd-annual-disc-connection.jpg
ORGANIZER;CN="Epilepsy Alliance North Carolina":MAILTO:PGibson@WakeHealth.edu
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220807
DTEND;VALUE=DATE:20220808
DTSTAMP:20260405T154433
CREATED:20220228T154259Z
LAST-MODIFIED:20220307T204132Z
UID:10000154-1659830400-1659916799@epilepsyallianceamerica.org
SUMMARY:Fundraising Event of Member Organization - Epilepsy Alliance North Carolina:  11th Annual Art For A Cure - Silent Auction
DESCRIPTION:11th Annual Art for a Cure Silent Auction \n$25 Entry fee includes hors d’oeuvres and beverage \nPlease call 800-451-0694 to RSVP \nSpace is limited \nProceeds benefit Epilepsy Alliance North Carolina
URL:https://epilepsyallianceamerica.org/event/11th-annual-art-for-a-cure/
LOCATION:Union Station – Winston Salem\, 300 South Martin Luther King Junior Drive\, Winston Salem\, NC\, United States
ATTACH;FMTTYPE=image/jpeg:https://epilepsyallianceamerica.org/wp-content/uploads/2022/02/11th-Annual-Art-for-a-Cure-flyer.jpg
ORGANIZER;CN="Epilepsy Alliance North Carolina":MAILTO:PGibson@WakeHealth.edu
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220913T160000
DTEND;TZID=America/New_York:20220913T170000
DTSTAMP:20260405T154433
CREATED:20220830T144134Z
LAST-MODIFIED:20220830T144337Z
UID:10000158-1663084800-1663088400@epilepsyallianceamerica.org
SUMMARY:Back to School Seizure Preparedness Webinar
DESCRIPTION:REGISTER IN ADVANCE FOR THE WEBINAR\nhttps://us06web.zoom.us/webinar/register/WN_B9jr-pguQhmk6ZCtC9qPZA\nAfter registering\, you will receive a confirmation email containing information about joining the webinar \nTopics to be addressed include:\nSeizure Action Plans and Rescue Medications\nPhysician and Parent Perspectives regarding Seizure Preparedness at School\nEpilepsy and Mental Health at School \nCONFIRMED SPEAKERS \n \nYash D. Shah\, MD\nPediatric Neurologist\, Our Lady of the Lake Children’s Health;  Louisiana \n \nCaitlin Bernard-Vincent\, LCSW\nEpilepsy Program Manager\, Valley Children’s Healthcare; Madera\, California \n  \n \nAmanda Mitchell\nExecutive Director\, Epilepsy Alliance Louisiana; Baton Rouge\, Louisiana \nNot available on September 13? \nThe webinar will be recorded and shared on Epilepsy Alliance America’s website later in September\, 2022. \nIn the meantime\, Check out our Seizure Preparedness Back to School Checklist \nIf you would like to ask any questions our panel in advance\, please email your questions to admin@epilepsyallianceamerica.org. \nThis webinar is made possible through the support of
URL:https://epilepsyallianceamerica.org/event/back-to-school-seizure-preparedness-webinar/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20221001
DTEND;VALUE=DATE:20221002
DTSTAMP:20260405T154433
CREATED:20220228T154406Z
LAST-MODIFIED:20220307T204123Z
UID:10000155-1664582400-1664668799@epilepsyallianceamerica.org
SUMMARY:Fundraising Event of Member Organization - Epilepsy Alliance North Carolina:  CASI Mid-Atlantic Regional Chili Championship
DESCRIPTION:Help Judge the Best Chili in North Carolina! \nAll proceeds benefits the Epilepsy Medication Fund \nFun for the whole family – Live Entertainment\, Cool Prizes\, Special Surprises \nClowns\, Face Painting\, Exciting Games\, Yummy Food \nNO ADMISSION FEE \nPiedmont Triad Farmers Market\nSandy Ridge Road / Exit off of I-40 \nTasting starts at 9:30am\nAwards and Presentations given at 2:00pm \nCooks\, judges\, and volunteers needed \nFor more information\, call: 800-642-0500\nEmail: info@epilepsync.org or mlawsonh@wakehealth.edu \nSponsored by the Epilepsy Information Service & Epilepsy Alliance NC – An Affiliate of the United Way
URL:https://epilepsyallianceamerica.org/event/regional-triad-chili-cook-off/
ATTACH;FMTTYPE=image/jpeg:https://epilepsyallianceamerica.org/wp-content/uploads/2022/02/chili-cookoff-flyer.jpg
ORGANIZER;CN="Epilepsy Alliance North Carolina":MAILTO:PGibson@WakeHealth.edu
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20221013
DTEND;VALUE=DATE:20221014
DTSTAMP:20260405T154433
CREATED:20220228T154450Z
LAST-MODIFIED:20230421T203510Z
UID:10000156-1665619200-1665705599@epilepsyallianceamerica.org
SUMMARY:Fundraising Event of Member Organization - Epilepsy Alliance North Carolina:  Evan's Cornhole Event
DESCRIPTION:Evan’s Cornhole Event on October 13th\, 2022 in Charlotte\, North Carolina
URL:https://epilepsyallianceamerica.org/event/evans-cornhole-event/
ORGANIZER;CN="Epilepsy Alliance North Carolina":MAILTO:PGibson@WakeHealth.edu
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230215T080000
DTEND;TZID=America/New_York:20230215T170000
DTSTAMP:20260405T154433
CREATED:20250819T193315Z
LAST-MODIFIED:20250819T193315Z
UID:10002785-1676448000-1676480400@epilepsyallianceamerica.org
SUMMARY:Drug Resistant Epilepsy & Alternative Therapies
DESCRIPTION:Not all people with seizures will have adequate seizure control with anti-seizure medications. \nNeurologist Dr. Thomas Wychowski from UR Medicine Neurology provides a detailed discussion what drug-resistant epilepsy is and other available treatment options. \nThis webinar was recorded on February 15\, 2023 and was hosted by Epilepsy Alliance of Western Central NY.
URL:https://epilepsyallianceamerica.org/event/drug-resistant-epilepsy-alternative-therapies/
CATEGORIES:Virtual Education Program
ATTACH;FMTTYPE=image/png:https://epilepsyallianceamerica.org/wp-content/uploads/2025/01/Webinar.png
ORGANIZER;CN="Epilepsy Alliance West Central New York (a part of Empowering People's Independence)":MAILTO:mradell@epiny.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230505T183000
DTEND;TZID=America/New_York:20230505T210000
DTSTAMP:20260405T154433
CREATED:20230421T210345Z
LAST-MODIFIED:20230421T210345Z
UID:10000159-1683311400-1683320400@epilepsyallianceamerica.org
SUMMARY:The Arts for Epilepsy Ball
DESCRIPTION:The Arts for Epilepsy Ball\n\nFriday\, May 5\n6:30 PM – 9:00 pm \nNorth Ridge Country Club\n6612 Falls of Neuse Rd.\nRaleigh\, NC 27615 \nRegister at epilepsync.org
URL:https://epilepsyallianceamerica.org/event/the-arts-for-epilepsy-ball/
LOCATION:North Ridge Country Club\, 6612 Falls of Neuse Rd\, Raleigh\, NC\, 27615\, United States
ORGANIZER;CN="Epilepsy Alliance North Carolina":MAILTO:PGibson@WakeHealth.edu
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230707T080000
DTEND;TZID=America/New_York:20230707T170000
DTSTAMP:20260405T154433
CREATED:20250819T192226Z
LAST-MODIFIED:20250819T192226Z
UID:10002784-1688716800-1688749200@epilepsyallianceamerica.org
SUMMARY:Driving & Epilepsy
DESCRIPTION:Upstate University Hospital Neurology Dr. Shahram Izadyar discusses the critically important topic of driving when you have the diagnosis of epilepsy. \nThis webinar was recorded in July 2023 and was hosted by Epilepsy Alliance of West Central NY.
URL:https://epilepsyallianceamerica.org/event/driving-epilepsy/
CATEGORIES:Virtual Education Program
ATTACH;FMTTYPE=image/png:https://epilepsyallianceamerica.org/wp-content/uploads/2025/01/Webinar.png
ORGANIZER;CN="Epilepsy Alliance West Central New York (a part of Empowering People's Independence)":MAILTO:mradell@epiny.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230712T120000
DTEND;TZID=America/New_York:20230712T130000
DTSTAMP:20260405T154433
CREATED:20230707T132805Z
LAST-MODIFIED:20230707T132805Z
UID:10000160-1689163200-1689166800@epilepsyallianceamerica.org
SUMMARY:Webinar: Sudden and Unexpected Death in Epilepsy (SUDEP) and the Use of Seizure Detection Devices
DESCRIPTION:July 12\, 12:00 – 1:00 PM \nRegister at: \ngo.rutgers.edu/July12Epilepsy \nJoin the Danny Did Foundation as they discuss their programs designed to raise awareness and education for Sudden Unexpected Death in Epilepsy – SUDEP and the use of seizure detection devices. Resources will be shared\, and an opportunity for questions and answers will be made available following the presentation. \nPresenters: \nMary Duffy\, Executive Director\, Danny Did Foundation\nKatie Gaughn\, Program Manager\, Danny Did Foundation \nNew Webinar Series: Epilepsy and Intellectual and Developmental Disabilities\nRutgers’ Community Living Education Project (CLEP)\, in collaboration with Epilepsy Alliance America and its member organizations\, is pleased to host this webinar series on the intersection of Epilepsy and Intellectual and/or Developmental Disabilities (I/DD). These FREE webinars will provide information and resources to benefit anyone with an epilepsy diagnosis\, caregivers\, and professionals.
URL:https://epilepsyallianceamerica.org/event/webinar-sudden-and-unexpected-death-in-epilepsy-sudep-and-the-use-of-seizure-detection-devices/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230803T190000
DTEND;TZID=America/New_York:20230803T200000
DTSTAMP:20260405T154433
CREATED:20230707T201934Z
LAST-MODIFIED:20230711T160604Z
UID:10000095-1691089200-1691092800@epilepsyallianceamerica.org
SUMMARY:Webinar: Off to College: A Guide for Students with Epilepsy
DESCRIPTION:Webinar: Off to College: A Guide for Students with Epilepsy \nDate: Thursday\, August 3\, 2023\nTime: 7:00 to 8:00 p.m. ET \nPre-register today\nClick here to register:  https://zoom.us/webinar/register/WN_8jJ2zK2dThaGrApIg96K-A\n\nJoin us for an educational webinar\, Off to College: A Guide for Students with Epilepsy. \nThe transition to college is a major milestone for young adults and their families. Epilepsy affects each person differently and college brings new factors that might not have been previously encountered.  As you plan for college\, developing a personalized plan for managing your seizures and your learning needs can help you to get the most out of the college experience both in and out of the classroom. Our experts are here to help you and your family plan accordingly. \nWe will have time for YOUR questions as part of the webinar. \nPresenters: \n \nNicole Hartmann\, DO\, MBS\nEpileptologist\, Lawrenceville Neurology \n \nDavid Nast Ph. D.\nDirector – Office of Specialized Services\, Ramapo College of New Jersey \n\nThis webinar is presented in partnership by: \n\n\n\n\nThe webinar is being produced by Epilepsy Alliance America. Funding was provided by Neurelis\, Inc. \n\n\n  \n 
URL:https://epilepsyallianceamerica.org/event/webinar-off-to-college-a-guide-for-students-with-epilepsy/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230804T080000
DTEND;TZID=America/New_York:20230804T170000
DTSTAMP:20260405T154433
CREATED:20250625T151236Z
LAST-MODIFIED:20250701T170932Z
UID:10001677-1691136000-1691168400@epilepsyallianceamerica.org
SUMMARY:Off to College: A Guide For Students With Epilepsy
DESCRIPTION:Epilepsy Alliance America’s “Off to College: A Guide for Students with Epilepsy” webinar aired live on August 4\, 2023. \nThe transition to college is a major milestone for young adults and their families. Epilepsy affects each person differently and college brings new factors that might not have been previously encountered. As you plan for college\, developing a personalized plan for managing your seizures and your learning needs can help you to get the most out of the college experience both in and out of the classroom. Our experts are here to help you and your family plan accordingly. The featured speakers are Dr. Nicole Hartmann\, Epileptologist\, from Laurenceville Neurology in New Jersey and Dr. David Nast\, Director of the Office of Specialized Services at Ramapo College of New Jersey. The webinar was produced by Epilepsy Alliance America in partnership with member organization\, Epilepsy Services of New Jersey. Neurelis provided funding to Epilepsy Alliance America to host and produce this webinar. All of the content provided was that of the speakers\, Epilepsy Services of New Jersey and Epilepsy Alliance America.
URL:https://epilepsyallianceamerica.org/event/off-to-college-a-guide-for-students-with-epilepsy/
CATEGORIES:Virtual Education Program
ATTACH;FMTTYPE=image/png:https://epilepsyallianceamerica.org/wp-content/uploads/2025/01/Webinar.png
ORGANIZER;CN="Epilepsy Alliance America":MAILTO:admin@epilepsyallianceamerica.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230810T120000
DTEND;TZID=America/New_York:20230810T130000
DTSTAMP:20260405T154433
CREATED:20230707T133015Z
LAST-MODIFIED:20230707T133015Z
UID:10000091-1691668800-1691672400@epilepsyallianceamerica.org
SUMMARY:Webinar: Seizure Rescue Therapies\, Seizure Action Plans\, and Seizure First Aid
DESCRIPTION:August 10\, 12:00 – 1:00 PM \nRegister at: \ngo.rutgers.edu/August10Epilepsy \nDuring this webinar\, Dr. Labiner will review the currently available options for rescue therapies for seizures and how to use them. Dr. Labiner will also discuss seizure action plans and who can benefit from these. Seizure first aid is vital for protection during seizures\, and we will review this with precautions typically advised for patients and families affected by epilepsy. \nPresenter: \nKatherine Labiner\, MD – Pediatric Epileptologist at Child Neurology Consultants of Austin\, part of Pediatrix \n\nNew Webinar Series: Epilepsy and Intellectual and Developmental Disabilities\nRutgers’ Community Living Education Project (CLEP)\, in collaboration with Epilepsy Alliance America and its member organizations\, is pleased to host this webinar series on the intersection of Epilepsy and Intellectual and/or Developmental Disabilities (I/DD). These FREE webinars will provide information and resources to benefit anyone with an epilepsy diagnosis\, caregivers\, and professionals. \n  \n 
URL:https://epilepsyallianceamerica.org/event/webinar-seizure-rescue-therapies-seizure-action-plans-and-seizure-first-aid/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230816T180000
DTEND;TZID=America/New_York:20230816T193000
DTSTAMP:20260405T154433
CREATED:20230707T154216Z
LAST-MODIFIED:20230707T173326Z
UID:10000094-1692208800-1692214200@epilepsyallianceamerica.org
SUMMARY:Back to School Webinar:  Preparing your Child with Epilepsy for the new school year
DESCRIPTION:Register here via: Zoom Webinar\nThe Webinar will also be broadcast via Facebook Live \nJoin us on for this informative program to talk about how to prepare for back to school for your child with epilepsy. Our expert panel will be available to answer your questions after the presentations. \nTopics to be covered: \n\nSeizure Action Plans and Rescue Medications\nSeizure First Aid Training in Schools\nEpilepsy and Bullying\n\nOur Speakers will be: \n\n\n\nSeizure Action Plans and Rescue Medications \nPresented by Dr. Inna Hughes \nInna Hughes\, MD\, PhD\, is an Associate Professor of Child Neurology and Epilepsy at the University of Rochester. \n\n\n\n\n\nImportance of Seizure First Aid Training in Schools \nLearn how Lydia Mattia\, and her mom\, Jessica Mattia\, advocated for inclusion of epilepsy education in their high school health curriculum. \nPresented by Lydia and Jessica Mattia \n\n\n\n\n\nBullying and Epilepsy \nPresented by Denise Eshenaur\, LCSW-R; DipACLM; Empowering People’s Independence \n\n\n\n\nThis webinar is presented in partnership by: \n\n\n\n\nThe webinar is being produced by Epilepsy Alliance America. Funding was provided by Neurelis\, Inc.
URL:https://epilepsyallianceamerica.org/event/back-to-school-webinar-preparing-your-child-with-epilepsy-for-the-new-school-year/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230907T150000
DTEND;TZID=America/New_York:20230907T160000
DTSTAMP:20260405T154433
CREATED:20230821T121109Z
LAST-MODIFIED:20230821T121533Z
UID:10000096-1694098800-1694102400@epilepsyallianceamerica.org
SUMMARY:Join us: Preparing for your Disney Experience
DESCRIPTION:Thursday\, September 7\, 2023\n3:00pm Eastern / 12:00pm Pacific \nRegister Today \nTHANK YOU for your interest in attending this year’s Education Expo and Awareness Day. We know that this is an investment of both time and money in YOUR epilepsy education and we want to make sure that you are getting the most you can out of the experience. \nJoin us for a LIVE webinar (which will also be broadcast on Facebook live) to get YOUR questions answered about the 11th Annual Epilepsy Awareness and Education Expo and Epilepsy Awareness Day in Disneyland Park. \nHear from: \n \nBrad Levy\nCo-Founder\, Sofie’s Journey \n \nBob Martin\nSVP Development and Communications\, Epilepsy Services of New Jersey\nMagic Vacations Travel Planner – A full-service travel planner specializing in Disney Destinations \nGet your questions answered.  Get insights about the agenda and speakers so that you can plan which sessions to attend.  Ask questions about the Disneyland resort – and how to get the most out of your time there. \nIf you cannot attend – don’t worry! We will share the recording after the webinar. \nRegister Today \n \n  \n  \n 
URL:https://epilepsyallianceamerica.org/event/join-us-preparing-for-your-disney-experience/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231012T120000
DTEND;TZID=America/New_York:20231012T130000
DTSTAMP:20260405T154433
CREATED:20230707T133452Z
LAST-MODIFIED:20230707T133455Z
UID:10000093-1697112000-1697115600@epilepsyallianceamerica.org
SUMMARY:Webinar: Special Considerations for Women with Epilepsy
DESCRIPTION:October 12\, 12:00 – 1:00 PM \nRegister at: \ngo.rutgers.edu/Oct12Epilepsy \nThis webinar will address considerations specific to women who have epilepsy\, including how hormonal changes affect girls and women with epilepsy\, how ASMs (anti-seizure medications) may impact birth control (contraception)\, special consideration before\, during\, after the pregnancy and while breastfeeding. Discussions will also include issues for mature women with epilepsy\, including menopause and bone health. Time for questions and answers will be considered following the presentation. \nPresenter: \nDipali Nemade\, MD\, MPH\nEpileptologist\, Orlando Health Neuroscience and Rehabilitation Institute | Neurology Group \nNew Webinar Series: Epilepsy and Intellectual and Developmental Disabilities\nRutgers’ Community Living Education Project (CLEP)\, in collaboration with Epilepsy Alliance America and its member organizations\, is pleased to host this webinar series on the intersection of Epilepsy and Intellectual and/or Developmental Disabilities (I/DD). These FREE webinars will provide information and resources to benefit anyone with an epilepsy diagnosis\, caregivers\, and professionals. \n 
URL:https://epilepsyallianceamerica.org/event/webinar-special-considerations-for-women-with-epilepsy/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231013T180000
DTEND;TZID=America/New_York:20231013T190000
DTSTAMP:20260405T154433
CREATED:20250625T152318Z
LAST-MODIFIED:20250702T183004Z
UID:10001679-1697220000-1697223600@epilepsyallianceamerica.org
SUMMARY:Special Considerations for Women with Epilepsy
DESCRIPTION:This webinar addresses considerations specific to women who have epilepsy\, such as how hormonal changes affect girls and women with epilepsy; how ASMs (anti-seizure medications) may impact birth control (contraception);  special considerations before\, during\, and after the pregnancy; special considerations for breastfeeding; mature women with epilepsy- menopause and bone health; special considerations for women with an intellectual or developmental disability. \n \nPresenter: Dipali Nemade\, MD\, MPH Epileptologist\nOrlando Health Neuroscience and Rehabilitation Institute | Neurology Group
URL:https://epilepsyallianceamerica.org/event/special-considerations-for-women-with-epilepsy/
CATEGORIES:Virtual Education Program
ATTACH;FMTTYPE=image/png:https://epilepsyallianceamerica.org/wp-content/uploads/2025/01/Webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231018T160000
DTEND;TZID=America/New_York:20231018T170000
DTSTAMP:20260405T154433
CREATED:20231006T194411Z
LAST-MODIFIED:20231006T201515Z
UID:10000098-1697644800-1697648400@epilepsyallianceamerica.org
SUMMARY:Epilepsy Awareness Day at Disneyland - Making the most of your trip
DESCRIPTION:THANK YOU for your interest in attending this year’s Education Expo and Awareness Day. We know that this is an investment of both time and money in YOUR epilepsy education and we want to make sure that you are getting the most you can out of the experience. \nJoin us for a LIVE webinar (which will also be broadcast on Facebook live) to get YOUR questions answered about the 11th Annual Epilepsy Awareness and Education Expo and Epilepsy Awareness Day in Disneyland Park. \nHear from: \n \nBrad Levy\nCo-Founder\, Sofie’s Journey \n \nBob Martin\nSVP Development and Communications\, Epilepsy Services of New Jersey\nMagic Vacations Travel Planner – A full-service travel planner specializing in Disney Destinations \nMUCH OF THE INFORMATION WILL BE THE SAME AS THE SEPTEMBER 7 webinar. However\, Speaker Schedules will be provided and you are welcome to ask questions about the sessions and the speakers so you can decide what is best to attend for you and your family. \nGet your questions answered.  Get insights about the agenda and speakers so that you can plan which sessions to attend.  Ask questions about the Disneyland resort – and how to get the most out of your time there. \nIf you cannot attend – don’t worry! We will share the recording after the webinar. \nRegister in advance for this webinar\nAfter registering\, you will receive a confirmation email containing information about joining the webinar. \n \n  \n  \n  \n  \n 
URL:https://epilepsyallianceamerica.org/event/epilepsy-awareness-day-at-disneyland-making-the-most-of-your-trip/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20231031T180000
DTEND;TZID=America/Los_Angeles:20231031T200000
DTSTAMP:20260405T154433
CREATED:20230822T131122Z
LAST-MODIFIED:20231025T154053Z
UID:10000097-1698775200-1698782400@epilepsyallianceamerica.org
SUMMARY:Halloween Dance Party:  October 31\, 2023
DESCRIPTION:Epilepsy Alliance America is hosting the Second Annual HALLOWEEN DANCE PARTY which will be held on Tuesday\, October 31\, 2023 from 6:00pm – 8:00pm in the Magic Kingdom Ballroom at the Disneyland Hotel in Anaheim\, California. \nWe are currently at capacity for this event (as of October 24\, 2023 at 9:45pm ET) \nLet us know if you would like to be put on the waitlist for this event.\nABOUT THE EVENT \nJoin us for FUN\, DANCING\, GAMES\, PRIZES\, GIVEAWAYS and our COSTUME PARADE as we celebrate Halloween 2023!\nDJ Kara will be spinning the tunes and leading dances for those of all ABILITITIES! \n \nCostumes Encouraged\nCostumes for ALL are encouraged but not required. Please refrain from monsters and other scary costumes\, costume weapons\, gore\, or other items that may frighten children. \nWe will provide masks\, capes\, and other costuming props free at the door to ensure everyone who wants to be dressed up is included. \n  \n \nHalloween Ball Concessions 2023 Menu \nBeverages and light refreshments will be provided\, thanks to the generosity of the Danny Did Foundation. Additional refreshments and adult beverages will be available for purchase. \nThis is an IN-PERSON event  \nThis event is open to the epilepsy community. It is one of several events held during the 11th Annual Epilepsy Awareness Expo and Day at Disneyland October 30 – November 1\, 2023\, which is the largest epilepsy patient education event in the WORLD.   \n  \n  \n \nPartners \nThank you to The Dravet Syndrome Foundation and The LGS Foundation for their continued commitment to helping families and uniting the rare epilepsy community. This is an inclusive event tailored for people with all types of epilepsy. We have taken extra care in arranging sensitive lighting\, sound\, flooring\, and other considerations to ensure a safe and fun evening. \nSponsors\n \nWE ARE AT CAPACITY:  You can sign up for the waitlist here.
URL:https://epilepsyallianceamerica.org/event/halloween-dance-party-october-31-2023/
LOCATION:Disneyland Hotel\, 1150 W Magic Way\, Anaheim\, CA\, 92802\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231115T120000
DTEND;TZID=America/New_York:20231115T130000
DTSTAMP:20260405T154433
CREATED:20230707T133246Z
LAST-MODIFIED:20231029T034324Z
UID:10000092-1700049600-1700053200@epilepsyallianceamerica.org
SUMMARY:Webinar: Seizure Triggers and Precipitating Factors
DESCRIPTION:Wednesday\, November 15: 12:00 – 1:00 PM\nRescheduled from September 27\, 2023 \nREGISTER HERE \nThis webinar will focus on the precipitating causes of seizures or “seizure triggers”. While some factors are well known for precipitating seizures in all persons with epilepsy\, such as missing medication\, other triggers are specific to a given person. The session will cover general\, as well as specific triggers or precipitating factors. It will also cover common drugs that may lower the seizure threshold. \nFirst aid for seizures will be discussed at the end of the session to assure that participants have good information\, along with resources for more information.  Ample time will be allowed for questions and discussion. \nPresenter: \nPatricia A. Gibson\, MSSW DHL ACSW\nDirector\, Epilepsy Information Service\nAssociate Professor\, Department of Neurology\nWake Forest University School of Medicine \nNew Webinar Series: Epilepsy and Intellectual and Developmental Disabilities\nRutgers’ Community Living Education Project (CLEP)\, in collaboration with Epilepsy Alliance America and its member organizations\, is pleased to host this webinar series on the intersection of Epilepsy and Intellectual and/or Developmental Disabilities (I/DD). These FREE webinars will provide information and resources to benefit anyone with an epilepsy diagnosis\, caregivers\, and professionals.
URL:https://epilepsyallianceamerica.org/event/webinar-seizure-triggers-and-precipitating-factors/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240117T190000
DTEND;TZID=America/New_York:20240117T203000
DTSTAMP:20260405T154433
CREATED:20240102T180253Z
LAST-MODIFIED:20240102T225012Z
UID:10000099-1705518000-1705523400@epilepsyallianceamerica.org
SUMMARY:Under the Lights: Screening and Conversation with Director\, Miles Levin (Virtual Event)
DESCRIPTION:Join us for a screening of the short film\, Under the Lights\, and a conversation with director\, Miles Levin.   \nWednesday\, January 17\n7pm ET / 6pm CT / 5pm MT / 4pm PT \nZOOM LINK\nPre-Registration is NOT required \nYou can RSVP for this event in this calendar invite and a reminder to log-in on January 17 will be sent to you. \nAdd the event to your calendar (link below).  Share with your family and friends.
URL:https://epilepsyallianceamerica.org/event/under-the-lights-screening-and-conversation-with-director-miles-levin-virtual-event/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240501T140000
DTEND;TZID=America/New_York:20240501T140000
DTSTAMP:20260405T154433
CREATED:20250711T205435Z
LAST-MODIFIED:20250711T205631Z
UID:10001685-1714572000-1714572000@epilepsyallianceamerica.org
SUMMARY:Childhood Absence Epilepsy
DESCRIPTION:
URL:https://epilepsyallianceamerica.org/event/childhood-absence-epilepsy/
CATEGORIES:Virtual Education Program
ATTACH;FMTTYPE=image/png:https://epilepsyallianceamerica.org/wp-content/uploads/2025/01/Webinar.png
LOCATION:https://www.youtube.com/watch?v=DN8NYHW_RtI
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240610T190000
DTEND;TZID=America/New_York:20240610T203000
DTSTAMP:20260405T154433
CREATED:20240430T164518Z
LAST-MODIFIED:20250625T151504Z
UID:10000100-1718046000-1718051400@epilepsyallianceamerica.org
SUMMARY:CARE for Caregivers: A dialogue with Marc Palmieri
DESCRIPTION:CARE for Caregivers\nSupport for those who provide care to people with epilepsy  \nCaring for someone who is living with epilepsy can be challenging.\nWatch and hear from Marc Palmieri\, a masterful storyteller\, but most importantly\, the parent of a child with epilepsy. \n \nAbout She Danced with Lightning: \n“Marc Palmieri is a masterful storyteller. She Danced with Lightning is a beautifully rendered memoir of a young family in crisis and a marriage challenged on the path to healing. When Anna\, Marc and Kristen’s infant\, experiences seizures\, the family embarks on a medical and emotional  odyssey that will require a steadfast love and determination to cope with all that lies ahead.  A resplendent story filled with hope. Brava.”\n-Adriana Trigiani\, bestselling author of The Good Left Undone \n“An earnest and personal perspective on one family’s medical struggles…Palmieri writes well\, using vivid sensory descriptors to immerse readers…He also logically weaves in his own personal story into the narrative…he honestly tells of trying to find himself while also being a caring father.”\n– Kirkus Reviews \n \nThis production of this webinar is made possible through the financial support of Jazz Pharmaceuticals.\nPlease note that the content of the presentation is solely at the discretion of Marc Palmieri and Epilepsy Alliance America.
URL:https://epilepsyallianceamerica.org/event/care-for-caregivers-a-dialogue-with-marc-palmieri/
CATEGORIES:Virtual Education Program
ATTACH;FMTTYPE=image/png:https://epilepsyallianceamerica.org/wp-content/uploads/2025/01/Webinar.png
ORGANIZER;CN="Epilepsy Alliance America":MAILTO:admin@epilepsyallianceamerica.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240814T190000
DTEND;TZID=America/New_York:20240814T203000
DTSTAMP:20260405T154433
CREATED:20240907T000343Z
LAST-MODIFIED:20250625T151548Z
UID:10000197-1723662000-1723667400@epilepsyallianceamerica.org
SUMMARY:Transition of Care Webinar
DESCRIPTION:Resources & support for caregivers helping loved ones transition to adult care or lifelong care. \nWhen it comes to transitioning a loved one with epilepsy from pediatric care to adult care or making decisions in light of our loved ones’ need for lifelong care\, the necessary steps can be confusing and overwhelming. This informative webinar that features a panel of experts who share on topics that are key to the transition of care process. \nThis webinar can be viewed here. \n \n  \nThank you to member organization Epilepsy Advocacy Network for coordinating and co-hosting this event.  \nThis production of this webinar is made possible through the financial support of Jazz Pharmaceuticals.\nPlease note that the content of the presentation is solely at the discretion of our speakers\, Epilepsy Alliance America\, and Epilepsy Advocacy Network.
URL:https://epilepsyallianceamerica.org/event/transition-of-care-webinar/
CATEGORIES:Virtual Education Program
ATTACH;FMTTYPE=image/png:https://epilepsyallianceamerica.org/wp-content/uploads/2025/01/Webinar.png
ORGANIZER;CN="Epilepsy Alliance America":MAILTO:admin@epilepsyallianceamerica.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240822T190000
DTEND;TZID=America/New_York:20240822T200000
DTSTAMP:20260405T154433
CREATED:20250625T150930Z
LAST-MODIFIED:20250701T170744Z
UID:10001676-1724353200-1724356800@epilepsyallianceamerica.org
SUMMARY:Back to School Webinar 2024
DESCRIPTION:Epilepsy Alliance America and Epilepsy Alliance Louisiana’s Back To School Webinar covers important topics for students with epilepsy\, such as seizure action plans\, rescue medications\, learning plans\, and self advocacy.
URL:https://epilepsyallianceamerica.org/event/back-to-school-webinar-2024/
CATEGORIES:Virtual Education Program
ATTACH;FMTTYPE=image/png:https://epilepsyallianceamerica.org/wp-content/uploads/2025/01/Webinar.png
ORGANIZER;CN="Epilepsy Alliance America":MAILTO:admin@epilepsyallianceamerica.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240904
DTEND;VALUE=DATE:20240905
DTSTAMP:20260405T154433
CREATED:20240907T000346Z
LAST-MODIFIED:20240909T203046Z
UID:10000199-1725408000-1725494399@epilepsyallianceamerica.org
SUMMARY:College Takeover
DESCRIPTION:Wednesday\, September 4th\, 2024 – All day \nOff to College Campaign \nTune into our social media channels all day for tips\, resources\, and answers to patient submitted questions! \nWe are excited to have a day-long takeover of our social media outlets\, answering YOUR questions about heading to college as a young adult with epilepsy. If you are a college student or a parent of a college student\, please join in throughout the day to hear board certified neurologist\, Dr. Nicole Hartmann\, respond to questions submitted by real epilepsy patients and their caregivers. \n \nThank you to member organization Epilepsy Services New Jersey for coordinating and co-hosting this event. \nThe production of this campaign is made possible through financial support of Neurelis. The content of the campaign will be the sole product of our experts\, speakers\, Epilepsy Alliance America and Epilepsy Services of New Jersey.
URL:https://epilepsyallianceamerica.org/event/college-takeover/
ATTACH;FMTTYPE=image/png:https://epilepsyallianceamerica.org/wp-content/uploads/2024/09/OTC-1-fA4Vi7.tmp_.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241104T180000
DTEND;TZID=America/New_York:20241104T190000
DTSTAMP:20260405T154433
CREATED:20241014T115734Z
LAST-MODIFIED:20241105T173015Z
UID:10000222-1730743200-1730746800@epilepsyallianceamerica.org
SUMMARY:Virtual Seizure First Aid Training
DESCRIPTION:We kicked off Epilepsy Awareness Month by offering a Virtual seizure first aid training led by Kelly Connor\, PhD\, PA-C. \nYou can watch the recording on our Your Tube Channel. \n 
URL:https://epilepsyallianceamerica.org/event/live-virtual-seizure-first-aid-training/
CATEGORIES:Training
ATTACH;FMTTYPE=image/png:https://epilepsyallianceamerica.org/wp-content/uploads/2024/10/SeizureFirstAidKelly-600x503-1.png
ORGANIZER;CN="Epilepsy Alliance America":MAILTO:admin@epilepsyallianceamerica.org
LOCATION:https://youtu.be/G5YkaNeVsuE?si=2ozfi9bIsn06fNxx
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241106T180000
DTEND;TZID=America/New_York:20241106T190000
DTSTAMP:20260405T154433
CREATED:20241101T141943Z
LAST-MODIFIED:20250702T190303Z
UID:10000223-1730916000-1730919600@epilepsyallianceamerica.org
SUMMARY:Seizure Recognition and Response Training - Spanish
DESCRIPTION:Watch the recording of the Seizure Recognition and Response Training\, held in Spanish by Dr. Giancarlo Lugo from Valley Children’s Healthcare\, one of our member organizations. \n \n 
URL:https://epilepsyallianceamerica.org/event/live-virtual-seizure-first-aid-training-spanish/
CATEGORIES:Training,Virtual Education Program
ATTACH;FMTTYPE=image/png:https://epilepsyallianceamerica.org/wp-content/uploads/2025/03/SFA-Training.png
ORGANIZER;CN="Epilepsy Alliance America":MAILTO:admin@epilepsyallianceamerica.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241119T180000
DTEND;TZID=America/New_York:20241119T200000
DTSTAMP:20260405T154433
CREATED:20241101T143622Z
LAST-MODIFIED:20241118T172033Z
UID:10000284-1732039200-1732046400@epilepsyallianceamerica.org
SUMMARY:Family Dance Party at Disneyland Hotel
DESCRIPTION:  \nJoin us for Epilepsy Awareness Day at Disneyland’s Family Dance Party! See below for more info. Scroll all the way down to RSVP! \nWHAT TO WEAR (IN ADDITION TO YOUR DANCING SHOES!)\nGet in the Disney spirit with us! We encourage you to bring your favorite Disney attire and wear it to the event! Disney costumes are allowed for children under 14. Adults are encouraged to wear their favorite Disney attire or outfits inspired by their favorite character.  We will have props and accessories available for those who want them!  We will have tiaras for our future princesses;  capes for our superheroes in-training\, and other fun accessories for both kids and the young-at-heart adults! Please avoid bringing any accessories with flashing or blinking lights. \nWhatever you decide to wear\, make sure you will be comfortable wearing it on the Dance Floor! \nFor more information about what Disney attire is allowed at Disneyland and on the property of the Disneyland hotel\, check here. \nREFRESHMENTS WILL BE PROVIDED\nA limited selection of food and beverages will be available. If you have dietary concerns\, you are welcome to bring your own snacks and beverages with you. \nSOUVENIR PHOTOGRAPHS\nWe will have a photography booth again.  Individuals and families can have their photos taken by professional photographer\, Brian Kramer\, and leave with a PRINTOUT of their photo to remember the Dance Party. \nACCESSIBILITY\nThe Dance Party is accessible for those who use wheelchairs and other mobility devices. Service dogs are permitted. \nQUIET AREA\nNEW THIS YEAR we have rented a system called “Quiet Dance Party”.  Users who would like to be in the Dance Party room but need a little less noise can use one of the headsets provided to have either noise cancellation or a lower volume of music than the DJ is playing.  You will be able to check out and return the devices used at the event as needed.  Individuals who need to leave the party for less noise or stimulation can do so as needed and re-enter as many times as needed. \nSEIZURE SAFETY\nRemember to bring your your medications with you to the event\, including any rescue medications. Don’t leave them back in the hotel room! \n 
URL:https://epilepsyallianceamerica.org/event/family-dance-party/
LOCATION:Disneyland Hotel\, 1150 W Magic Way\, Anaheim\, CA\, 92802\, United States
CATEGORIES:Connection Program / Activity
ATTACH;FMTTYPE=image/jpeg:https://epilepsyallianceamerica.org/wp-content/uploads/2024/11/EADDL-Dance-Party-Invite-FINAL-169-NEW-1.jpg
ORGANIZER;CN="Epilepsy Alliance America":MAILTO:admin@epilepsyallianceamerica.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241127T173000
DTEND;TZID=America/New_York:20241127T183000
DTSTAMP:20260405T154433
CREATED:20241125T144715Z
LAST-MODIFIED:20250327T151039Z
UID:10000353-1732728600-1732732200@epilepsyallianceamerica.org
SUMMARY:Virtual Support Group:  Parents of People with Epilepsy
DESCRIPTION:Virtual Parent Support Group\nMeets the 4th Wednesday of every month from 5:30 pm – 6:30 pm (ET) via Zoom. \nRegister here. \n \nHosted by Epilepsy Alliance Ohio. Open to parents of people with epilepsy regardless of location.
URL:https://epilepsyallianceamerica.org/event/support-group-parents-of-people-with-epilepsy-2/2024-11-27/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://epilepsyallianceamerica.org/wp-content/uploads/2025/02/Virtual-Support-Group.png
ORGANIZER;CN="Epilepsy Alliance Ohio":MAILTO:eao@epilepsy-ohio.org
LOCATION:https://epilepsyallianceamerica.org/event/support-group-parents-of-people-with-epilepsy-2/2024-11-27/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250109T190000
DTEND;TZID=America/New_York:20250109T200000
DTSTAMP:20260405T154433
CREATED:20250102T183835Z
LAST-MODIFIED:20250409T164208Z
UID:10000658-1736449200-1736452800@epilepsyallianceamerica.org
SUMMARY:Virtual Support Group: Caregivers
DESCRIPTION:Open to caregivers of pediatric and adult epilepsy patients. Hosted by South Carolina Advocates for Epilepsy. Email Karen@scepilepsy.org for link (specify caregiver group).
URL:https://epilepsyallianceamerica.org/event/support-group-caregivers/2025-01-09/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://epilepsyallianceamerica.org/wp-content/uploads/2025/02/Virtual-Support-Group.png
ORGANIZER;CN="South Carolina Advocates for Epilepsy (S.A.F.E.)":MAILTO:Karen@scepilepy.org
END:VEVENT
END:VCALENDAR